Hello everyone,

Tyler saw the doctor yesterday about his jaw. They said that the skin is pulling too tight on his scar and they want Ashley to massage it. They will have to watch this closely because it can cause a lot of pain. But it hasn’t yet.

Tyler gets scans in September to make sure the monster isn’t back in his body. [I HATE CANCER!!!] He will all so have leg surgery around the end of September on both legs to remove his screws. I just pray he will be able to walk.

We are hoping to send him to school so he can be around other kids besides his brothers…and he will learn so much more. Tyler will be in third grade. I got him a few new pairs of pants and was able to find him some shirts at Wal-Mart marked down to five dollars.

Tyler is playing his Xbox again thanks to Mr. Steven and his son. They sent Tyler a box of games. We opened the box and Tyler went, “Wow just look at this!” He said, “Nanny, Steven really cares about me. He’s really a nice man.” Thank you Steven. You have always been here for Tyler. We thank God that he sent you to Tyler and our family!

Thanks everyone who has helped Tyler fight his cancer. You all are the reason he’s here. God heard your prayers. But please let’s pray Tyler stays in remission.

The Little Rebel is going to have another cruise-in for Tyler on September 18 to help us with gas and the other things Tyler needs. We have a $2,000 hospital bill in Maryland that has to be paid before Tyler can go back up there for his next surgery. Medicaid doesn’t pay everything. But thank God, it paid the most of it. Dr. Rodriguez donated his services for Tyler. He’s just amazing and such a great doctor. God has sent us so many angels!

Please say a prayer for all the cancer kids. Unless you have a child with cancer, you don’t know what these families go through each day. Even when the child’s in remission, there is just so much worry. Will it come back? Will God take our child to heaven? And like Tyler, his little body is all cut up with scars everywhere. You have to go watch him suffer with shots, being cut open, not knowing if he will pull through the next surgery. Can you imagine this little nine-year-old having 41 surgeries?

God is still with us and I have my faith. There are even kids that go through more than Tyler has. Kiss your kids each day and tell them you love them. I do. You don’t know what tomorrow will bring.

God bless. We love you all.
–
FROGgin’

for

Tyler

Darlene Cox

Tyler Tucker c/o Darlene Cox
PO BOX 14386
Greenville, SC 29610

Hi everyone,

Tyler is still not well from his surgery. Doctor says it is going to take a while. Tyler woke up with a temperature yesterday of 102 . He felt bad all day. He’s up and playing again today, though.

His little mouth is already turning side ways again. His mom says a lot of it is because he has no teeth. They can not give him implants because of the metal and the dentist said Tyler cannot hold false teeth in. So he has to deal with it and eat soft foods. Yesterday he was gumming a ear of corn though.

I was wondering if any of you had any X-box 360 games your not playing any more? Tyler would love to have them. He has beat all his and is bored to death. We cannot afford to go buy these. Ssomething went wrong with his computer so he can’t use that right now till we can get it fixed again.

Tyler will be having surgery on his legs around the end of September or August. No date yet, they just say he has to have it done soon. Tyler still weights only fifty-nine pounds, but he is eating really well. I wish he could gain some weight! The doctor said that would help his legs. I sure hope his legs don’t start hurting again when the weather gets. cold.

We wanted to go to Charleston for Courageous Kids reunion but the doctors don’t think that is a good idea with the water slides and air boats that will be there. Tyler could fall and mess up his jaw after all he’s been through. I will miss seeing everyone, but must do what is best for my TyTy.

Please keep praying for Tyler. He has so much more to go through and I know that my faith has to stay strong. It was very hard to see him cut almost from ear to ear, but we knew that it had to be done and will have to be done over and over again. He’s such a trooper.

My sincere thanks to each of you. There are too many to thank individually, but you know who you are. Time and again, we have seen that God has sent so many angels to help us. We are so grateful- we love you.  God bless you all.

Nathan is doing better but will have a scar from his burn. I will never let him have another sparkler. He will just have to use the little poppers you throw on the ground.

–
FROGgin’

for

Tyler

Darlene Cox

Tyler Tucker c/o Darlene Cox
PO BOX 14386
Greenville, SC 29610

Tyler’s neck hasn’t healed all the way but it is making progress. He has a pretty good cut. I guess it will just take time to heal. He’s still doing well. He doesn’t like all the heat because it makes his neck burn when he sweats. He’s seeing his doctor but we haven’t heard about scans yet. Looking to hear soon I hope. Guess they are giving him time to get over his operation first. Tyler will have to have surgery on his legs to remove the screws. He’ll see the doctor in August for that and they will set up everything. Guess there seems to be no end to this child’s suffering. He’s strong and God is with us all the way.

I want to thank each of you that have helped us so Tyler can be taken care of. There have been so many long trips out of state, even seeing the doctors here  24 miles to Greenville and 24 back. That’s 44 four miles a trip, sometimes three days a week. Then you have to feed the kids if they sit at the doctors all day. Gas has been so high. Please believe me when I say we really appreciate all that has been done. You all have been wonderful. Tyler has been so lucky to know you all care so much.

He’s still got so much more to go through, so please keep him in your prayers .

I really think that Tyler may need emotional therapy because of all hes been through.

We had a wonderful 4th. Grilling out with the boys and Ashley and Richie. We only got sparklers for the kids thinking they wouldn’t get hurt with them, but we were wrong. My hubby George was helping Nathan and Nathan touched his shorts with the end of the sparkler and the darn shorts caught fire! Burned  Nathans leg pretty bad and scared the dickens out of me. I was screaming my poor baby was on fire. He’s okay now , but he will have a scar. That shows how things can happen so fast . You never know what tomorrow will bring so please let your kids know each day that you love them.

If you all are visiting Tyler’s page, please sign it. It means so much to him to know you were reading his page.
God bless each of you and we love you all.

FROGgin’

for

Tyler

Darlene Cox

Tyler Tucker c/o Darlene Cox
PO BOX 14386
Greenville, SC 29610

Hello,

Well, things here are still good. Tyler’s not well, but doing great for all he’s been through. The doctor says his jaw is healing great. He will see him again in August, I think it was the 26th. He is also calling Dr. Rodriguez and they are setting up scans in Greenville at the children’s cancer center for Tyler. He said that because there is a chance the cancer can come back, Tyler needs to be scanned. Tyler is a strong boy. Thank you for all the wonderful get well cards and putting a smile on Tyler’s face.

Tyler went to the doctor about his legs. They said that they were okay. The screws are coming through the skin because Tyler is so skinny. He said Tyler really needs to put on some weight, but that’s easier said than done. He said that he will have to operate to take the screws out soon. The date for that is not set yet. As soon as we no more info, I will post. Tyler will most likely have to wear braces again on his legs.

I thank god for every day we have with Tyler and all our kids. Little Ellie passed away. Her link was on the last post. Her funeral was today. Her family is suffering and missing her so much. Please visit Ellie’s guestbook and support her family during this difficult time.

God bless each of you
We love you all

–
FROGgin’

for

Tyler

Darlene Cox

Tyler Tucker c/o Darlene Cox
PO BOX 14386
Greenville, SC 29610

Hi,

This looks bad, but he is OK. Thank you Jesus. Thank you children flight of hope for our safe and wonderful flight to and back home from Maryland. Made it so much better for Tyler. It’s a shame the way Medicaid works in SC, when a kid like Tyler needs it so much. That was the reason Tyler couldn’t stay in the hospital because Medicaid won’t pay what they get payed in Maryland. So as soon as he was able he is sent back to Greenville. We will have a hard time next week. Tyler will have to see doctors here and they will take over his care. Also he will have to go to the leg doctor. His foot is sideways again, meaning the pin most likely has come loose.

Thank you so much for all the cards and everything that has been done to help Tyler. Please don’t stop those prayers. God is hearing all of them. We now have another surgery down, but more to come. God bless each of you.

–
Darlene Cox

Tyler Tucker c/o Darlene Cox
PO BOX 14386
Greenville, SC 29610

Hi all. I read a web page this morning about a little girl named Ellie. It made me get on my nees and thank God for all the miracles he has given Tyler and this family.

I have learned a lot going through this journey with Tyler. I learned that the most inportant thing is to keep your faith and know that God is with you all the way, that God has a reason for what he does and that he answers prayers. I also know that there is always someone worse off than you are. No matter how hard things are, there are families that are having it much worse. I learned that there are people that care and want to help…that you take nothing for granted…that this could be your child, that you teach you children about God and you tell them each day you love them. No one knows what tomorrow will bring. I thank God each day for all my blessings, that he has kept me in good health so I can be with Tyler and Ashley on this long journey. It’s not over. Tyler still has a long way to go. I know God will be right with us.

Once I took Tyler to church, I think he was four or five, to the Easter play. I will never forget his words as he lay in my lap, because he was sick from chemo. He looked up and asked, “What is this place nanny?” I told him it was God’s house. He said, “Nanny, that’s the man you said stayed at the hospital with us and was holding your hand.

I just wanted to share this with you all. I learned to love and respect others and to share what you have. There are so many families that need support. If god decides that it’s time for Tyler in one of his surgeries, that God picks the most special roses in the garden for his kingdom and that you will meet with your babies again one day.

I feel so sorry for these kids and there families. Even though I know they’re going to a better place. Gosh how they are missed! And their families are hurting. I ask God to be with Ellie’s family to comfort them. I pray that there will be something soon that will kill the cancer monster.

Okay, now for Tyler. He is fine and eating, and he even played a game yesterday day on the Wii. The house let him bring it to the room even though they were not suppose to. He sees the doctor Thursday. He still has a lot of drainage, so I don’t know if they will remove the drain tube from his neck. He’s getting stronger each day, getting around with out a car is really hard to do, but again Gods is with us.

Tyler’s doctor is the most wonderful man in the world (oops, besides my George!) It shouldn’t be long defore we are sent home because of the medicaid. Tyler will be having scans in Greenville to make sure the monster hasn’t come back. I know it hasn’t, but we need to be safe. He has an appointment on the 26th (I think) to look at his legs and make sure all the screws are still in place. All this will be in Greenville.

I sure miss baby Nathan, Jayden and Ethan. Ashly and I are doing great. Here are some photos of Tyler on the plane.

One more thing. Please put my granddaughter Jessica in your prayers. She has MS at 21 years old. She’s taking a shot every other day to slow it down. The doctor says that this will get bad and will be really hard for her.

Darlene Cox

Tyler Tucker c/o Darlene Cox
PO BOX 14386
Greenville, SC 29610

Tyler is doing great, and all looks great. Dr. Rodriguez, we love you! There are not enough words to thank you for saving our Tyler.

Tyler is a trooper came through surgery really well. He is on pain meds, but he’s doing good. They cut his neck and he has a drain tube.

Tyler woke up with a good bit of blood at his neck incision this morning and was feeling sore, but that is to be expected. We will be at the Ronald Mc Donald house. All the beds at hospital are full, so they felt it would be safe to take Tyler to the Dr. from here. Ronald McDonald House has given permission for Tyler to eat in his room since he can not walk around just yet.

As soon as Tyler is able he will be sent back to Greenville. SC medicaid will not pay what the hospital and doctor get in Maryland, so he cannot stay. There will be a doctor waiting for him in Greenville. Darn medicaid in SC! I guess I’d better just be glad and thanking God we have it. Dr. Rodriguez has also contacted a cancer hospital to get them to do scans for Tyler in Greenville. Even though he’s in remission, there’s a 60 percent chance that it could come back.

Tyler’s so strong and such a trooper. He has fought hard and he has won. The cancer monster is taking so many children. Please pray for all these kids as you remember Tyler in your prayers.

GOD BLESS WE LOVE YOU ALL

RONALD MC DONALD HOUSE MARYLAND ROOM 307

–
Darlene Cox

Tyler Tucker c/o Darlene Cox
PO BOX 14386
Greenville, SC 29610

Updated photos in from Darlene. If this image of Tyler and Ashley doesn’t break your heart, I don’t know what will. My heart goes out to them both!

JUST wanted to let everyone know to please remember Tyler and our family as we travel to Maryland on Sunday and Tyler’s surgery Monday. He’s all ready to go and doesn’t seem to mind it at all. I don’t think he remembers the surgery in Auguest except that he was out of his body. He said he hopes that doesn’t happen ever again. That it scares him.

Pray, pray, pray! We love you all and thanks to all that have sent all the wonderful cards.

Darlene Cox

Tyler Tucker c/o Darlene Cox
PO BOX 14386
Greenville, SC 29610

Hello Everyone,

Tyler surgery date is on the 14th we will fly from Greenville on the 13th. I want to thank the wonderful people that have made this possible. Thanks to the flights of hope who will be flying us there and back. Thanks to all the people at Little Rebel who had the cruise-in in for Tyler. Thanks to a wonderful lady named Leeann and her wonderful family…you are so much appreciated. You worked so hard at the cruise-in. Leeann told everyone about Tyler and arranged the cruise-in. She has a heart and loves helping others.

Also all of you who sent cards, and to others who have done things to help, we thank you all so much. You know who you are. We appreciate all that been done. Tyler loves getting mail, so are cards are appreciated address at the bottom of page.

Tyler is doing OK. He is not scared to have the surgery because he knows it will help him. Please pray for him and pray that we won’t have to go through what we did in August. It’s so hard to watch your child go through all this not knowing when he goes in if he will be coming home with you. We have the best doctor, Dr. Rodriguez. He is wonderful and takes care of Tyler as if he were his son. Thank you Dr. Rodriguez, we love you. The world has some wonderful caring people out there.

I will be leaving Nathan with my husband. The little guy is older now and I think it will be aright. Ashley will leave Ethan and Jayden with their daddy. I hope we won’t be gone too long. I know the other kids will miss us.

Tyler has had to reconstruct his face, jaw, cheek from the damage to cancer, and he’s suffered tremendously with everything from intense pain, inability to eat, loss of structure in the face, and so much more. When things like this happen to a child, it’s not just that child that suffers. It’s the whole family. Please kiss your child and tell them you love them. You don’t know what tomorrow may bring. Think what if this were your child? All I ask is to say a prayer for these kids. God hears those prayers. Please leave us a message here at tylertucker.com or at www.caringbridge/visit/tylertucker .

One other thing…thank you Cancer Society of Greenville for the wonderful photo of Tyler. I have never seen anything so beautiful!

We love you all.

–
Darlene Cox

Tyler Tucker c/o Darlene Cox
PO BOX 14386
Greenville, SC 29610