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tylerTyler is leaving Wednesday for Maryland. Please keep him in your prayers. He’s been hurting a lot and his face is already starting to turn again. He can hardly eat, has no teeth and cannot get any put in…  Maybe one day.  His legs are hurting and he’s miserable. This has been such a long journey. Only god knows why.

I want to thank Courageous Kidz for renting a car to get Tyler to Maryland and sending some gas cards. Thank you for all your love and support, and for being Tyler’s angel. It’s so wonderful to have a Courageous Kidz family. We could use some donations for food, if any one wants to help Tyler and his family.

I will be having a complete knee replacement on June 17, so please keep me in your prayers. Thank god I have my husband George. He’s such a wonderful, caring man.

We love you all and thank each and every one of Tyler’s angels. I wish I was able to work so I wouldn’t have to ask for the help. Love you all!

FROGgin’    (F.R.O.G. – Fully Rely On God)

Darlene Cox /Tyler Tucker

85 Cool Springs Church Road

Travelers Rest, SC 29690

tylertucker.com

http://www.caringbridge.org/visit/tylertucker

DONATIONS
you can donate to help Tyler at PayPal –

or mail –
Tyler Tucker c/o Darlene Cox
PO BOX 14386
Greenville, SC 29610

Hello every one.

I know you all are waiting for an update. Well, things are still not good. Tyler is still having a lot of pain in his neck and the surgery site is still draining. His legs are giving him a fit. He has gained three pounds. He doesn’t want a feeding tube and says he doesn’t want any more surgeries, but that will be according to how bad he gets.

He has to go back to Maryland on the twenty ninth. We have not gotten a flight yet. I’m hoping to hear from the flight soon, so we can set up transportation from the airport to the hospital. I pray we don’t have to drive back up there. But, we will if we have to.

We are so worried about things. Ashley got a letter from North Carolina court saying she was supposed to be in court about the wreck she was in. She didn’t get a notice telling her to be there and it was in Greensboro, NC.

Anyway, they said that she was charged $439 for missing court and that it had to be paid by the twenty six of May or she will have no license, and will be placed in jail. Gosh, I don’t know what Tyler will do if she goes to jail and loses her license!  Without a license Ashley cannot get Tyler to his doctors. I am having my knee replacement and won’t be able to travel with him. He will give up without Ashley. She has been crying, saying she doesn’t want to go to jail, but I don’t have the money to help her. It’s in god’s hands. She called and tried to talk to them but it did no good.

Please pray about this!

If anyone can help, we would be so grateful. We could also use food cards.  This has been a long journey, and is a long way from being over.

We love all Tyler’s angels and know that you are the reason that Tyler is with us. Your love, prayers and support mean so much. Thank you from the bottom of Tyler’s and my heart.

Also, Tyler hasn’t been getting any cards. If you could mail him one, he loves reading them. May god bless you all!

Frogging’    (f.r.o.g. – fully rely on god)

tylertucker.com

Http://www.caringbridge.org/visit/tylertucker

 

Donations:

You can donate to help Tyler at:

PayPal: 

Tyler tucker c/o Darlene Cox

Po box 14386

Greenville, SC 29610

As it turns out, Ashley stuck to her guns. The doctors finally installed Tyler’s artificial jaw. After a 13-hour drive, they are now home and dealing with recovery process. He will see the pediatrican for an MRI and other test. He has a lump in his breast that needs to be examined. Pray that it’s not cancerous!

Tyler also needs to go to Atlanta once a month for pain management. The center told Ashley to call Medicaid to find out if there is help to pay for transporting him there.

Tyler is down to 65 pounds at age 13. That is really scary. Darlene said she watched Papa help Tyler to the bathroom and back and it brought her to tears because he looks so so little.

Tyler may have to have a feeding tube soon, but has to see the nutritionist first. They will arrange for a surgeon to put in a feeding tube if he needs it. Darlene says he looks “just so wore out and tired.”

Darlene sends her love and thanks God and everyone for caring and loving Tyler and his family.

There have been a few gaps in Tyler’s history over the last few months. January really threw the family a curve ball. Tyler was to have surgery January 24, but the family was in a bad car accident on January 23. The surgery was delayed until April 18th. This is Tyler’s 60th surgery. What follows is a summary of updates regarding Tyler’s surgery so those of you following his progress here know what’s going on.

March 21, Darlene gave us an update on her condition. After her weight loss surgery, she suffered an infection that caused complications.

March 23, Tyler’s Cruise-In fund raiser went well. It was blessed by fair weather and the family raised about half the money needed to travel for Tyler’s surgery. They are unable to fly and because of the January car accident, don’t have a proper vehicle to drive.

April 15,  The family departed for Tyler’s surgery. Unfortunately, they must go through this without their greatest advocate, Dr. Rodriguez. He no longer works at Johns Hopkins. But, Darlene being able to go along is a blessing, especially with the medical complications she has been having.

April 18, Tyler’s mom had to make some painful decisions. In the past, doctors have tried using bone from Tyler’s leg (on more than one occasion) to repair the damaged jaw. These operations have failed, leaving Tyler still without a functioning jaw and now with screws to hold the bones in his legs together. The bones are so soft from all the cancer treatments that the screws often become loose, giving him pain when he walks. No wonder Ashley refused when the doctor said he wanted to take some of Tyler’s rib bone to try again.

April 19,  Tyler’s surgery took place. He is okay but in terrible pain. He was discharged to Ronald McDonald house because of a lack of insurance. This kid belongs in the ICU. It’s painful to watch from so far away!

April 22, I emailed Darlene for details on the surgery, whether they used rib bone, etc. I will update the blog as soon as I have the details.

Please keep praying for our dear little Tyler!

I’m hoping your donations could help raise money for Tyler to rent a van to get to Maryland. We cannot get a flight because we have to get round trip tickets and the doctors cannot give us a return date. It costs each person besides Tyler $640. It would cost around $2,000 to rent a van and we just don’t have that kind of money. the truck was wrecked in the accident, so we can’t get him there that way.

My little Kia is so small and we will be so packed. I have to go because I can’t be left alone for four to six weeks after my surgery. I just had stitches out recently, over 200 of them, and I still have a drain. There is no one to stay with me that George can depend on. I would try having a yard sale, but I can’t even do that after my surgery.

Tyler’s going to be miserable coming home with his neck cut from ear to ear. I am desperate to get him help. If we have to take the Kia, so be it, but we could still use help with gas and food cards. I know you don’t see Tyler much, but he cannot help that he’s sick and it hurts all the time.  I pray god will make a way.

FROGgin’    (F.R.O.G. – Fully Rely On God)

tylertucker.com

http://www.caringbridge.org/visit/tylertucker

DONATIONS
you can donate to help Tyler at
pay-pal  " target="_blank">
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Tyler Tucker c/o Darlene Cox
PO BOX 14386
Greenville, SC 29610

 

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