Archive for March, 2007

SAT, March 31 2007 2:09 PM CST

HEY EVERYONE THERES NO NEW NEWS STILL.
TYLER HURTS IN HIS LEG.HES STILL HAVING JAW PAIN.WE ARE SEING THE SURGEONS ON THE FIFTH WILL UP DATE THEN.THANK YOU ALL FOR NOT GIVING UP ON TYLER WE LOVE YOU ALL .

Thursday, March 15th, 2007 2:09 PM CST
Hello everyone.sorry for not updating sooner.Things have been wild around here.Doctor Oneals office called and changed our app to April 5th.That was a good thing because it gave us a little time.I haven’t been feeling well maybe by then I will be able to make the trip.we may have to stay in a motel because we have to be there early that morning about 7 ,Tyler’s not in school hes been out 3 days legs hurting and hes seeing a doctor here today.I feel so bad that they will be taken the bone from his other leg to do the jaw replacement.Theres just no other way.The bone needs to come from him every where else is to little.I even ask if they could use my feblia bone I would give it to Tyler but was told no.Please keep praying for Tyler and our family.We went to a car show to help raise money for Courageous Kidz
A Safe Haven for Kids with Cancer”http://courageouskidz.org/
this is a wonderful org.has help us in way So many times.They are just like family and treat you as family.Tyler was given a electric wheel chair FROM CORVETT WORLD AND COURAGEOUS KIDS.To use after he has his surgery.Tyler was worn out and didn’t make it the last day but papa and I went for him.Please pray that I keep my health so I can be here for tyty and Ashley I really don’t know what they would do with out me.I guess they would manage.I just worrie so much about them and Tyler has so much more to go through.Pray pray pray .God hears those prayers.
THIS IS STRESSFUL,EMOTIONALLY,FINANCIALLY
Then my grand daughter had her baby yesterday day the 14th by csection.He just wouldn’t come out.He weigh in at 7 pounds 11 ounces.Both are doing great.Baby came own my moms birthday. My mom passed the year Tyler got sick so I was thinking a lot more about her yesterday.shed a few tears.But aim ok. wanted to tell you that baby Jayden is doing great hes so sweet and crawing now.Hes a mommys boy.Tylers a nannys boy for sure.I MAKE SURE THAT I TELL BOTH BOYS I LOVE THEM EVERY DAY.
Hug your children,tell them you love them every chance you get.
Remember that children are a gift that is given to us and we need to
Make every moment a memory and never take anything for granted.
Tyty is loving all the cards he loves getting mail.when hes a little older we plan to start sending thank you to each one that has sent mail to Tyler. it will take us a while he has recived a lot and so appercates it,

Tuesday, March 6, 2007 2:09 PM CST
We just got home at ten last night from seeing doctor bock,well one more time things have changed.The men that they did the protean bone on are not doing so well so they don’t want to try it own Tyler .They said thatTylers ribs are to small to use and his hip bone is to small also .So they want to take the Fibula bone from his other leg.Said that is the only way.Except to wait till he was older.But that he needs the surgery now that his face will be sideways that he may not be able to eat with out hurting.They now say that we need to go to doctor Oneal on the 22nd and that he is setting the surgery up for six to eight weeks.At the end of April.that everything is in order. This is going to give Tyler two bad legs but he will get where he can walk again.Its so sad ,hes had so much trouble with the the first leg bone being taken out and had so much pain.Had to use a wheelchair and a brace.Therapy for a long time.That leg has a pin that has still got to be taken out.They think this bone will most likely live in Tyler jaw.First time they had to use radiation and they want use radiation this time.
All I can do is trust in the lord and know that tyty will be ok .Its all in gods hands.We have been to Charleston three times last month.That’s seven hrs round trip.
Its just so stressful and gas and food cost so much.we cant aford a motel room.Trying to save what I can for the surgery.we will stay in Charleston as long as Tyler is there.When they give us dates of surgery we are taking the camper down to stay in.Please pray that Tyler will be ok .Storm heaven for him.we know that prayer is the most inportant thing.pray that god will take care of all our needs finacally.For I know god is able.I will trust in him. also pray for me i havnt felt well in a while doctors say i have Sleep acme.Maybe ill feel better when i get treatment.had test a few days ago and they called said i neeed to come back to get set up for machine.Iam just so tired and worn out .
ALSO THANK ALL OF YOU FOR THE SNAIL MAIL AND LITTLE GIFTS TYLER LOVES IT .
Darlene Cox

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