Archive for April, 2007

MON, April 30, 2007 2:14 PM CDT
TYLER IS SICK HES BEEN TO THE DOCTOR AND TO THE ER .THEY SAY EAR INFECTION .BUT HES BEEN RUNNING A TEMP
FOR 4 DAYS NOW AND CAN NOT KEEP THE MEDICINES DOWN CALLED THE DOCTOR AND WAS TOLD WHEN WE GIVE NEXT DOSE IF IT WONT STAY DOWN TO TAKE BACK TO THE ER .AND TELL THEM HE NEEDS SHOTS OF THE MEDICATIONS .PLEASE PRAY FOR TYLER HIS TEM IS 101 TO 102 DARLENE AND TYLER

Friday, April 27, 2007 10:01 AM CDT

Hello .Well we are back home from Charleston .A little up set because they keep saying the same darn thing .They had Ashley sign the forms for Tyler’s surgery and said that they are Scaleing it .As all ways they will call in a few weeks.Doctor oneal said that they are going to have to Contac doctor Day and make sure every one still agrees with the whole team.This was already suppose to have been done .He said that they are worried about hitting the nerve in Tyler’s jaw and that this would be bad .Tyler would really be messed up for life the surgery will take at least sixteen hrs and could take up to twenty four hrs .He also said that the reason that The doctor also said that there are only 2 or 3 other doctors in the world that have performed the surgery that tyler had on a 2 year old so the dont really have a guide to follow.and that this surgery was going to be a rough one.I ask if Tyler could die having this surgery and he said yes .That Tyler may not have a tach but would have his jaw wired .That he will be using the fibula bone from the other leg unless something changes before surgery.He said that while in surgery they will get the doctors to remove the pin from the first leg they done.he said that Tyler needs something done.He also said that he knows Tyler was hurting but he don’t think this will take all the pain away .He said that Tyler will always have some pain.He is having trouble eating he chews and his hole jaw moves in a round motion ,He has to gum most his food.But has learned to eat a few different things .he has only a couple teeth and the roots are all dead and they are going to come out in surgery also.
I told doctor Oneal that I think they need to get something done. We are tired of going to doctor after doctor. being told the same thing .That we live a long way from Musc hospital and that it takes a lot of money to travel there.and have to stay two three days .That they have been planing this surgery a long time now.I think that they have helt off doing the surgery as long as they can And Tyler is really having a hard time with all this.This trip in gas was ninety dollars and the motel was sixty nine plus food for two days.Now we are home waiting to see what they say next .And waiting for the surgery date .
Tyler’s uncle Jermey is trying to get a web benefit started for Tyler and our family if you would like to find out about it please click own the hulk banner own Tyler’s page please please pray for Tyler and our family.This is something that affects the whole family .The cancers in remission.But the afther affects are worst than the cancer .Its all in Gods hands .So I will just trust in him and known that thing s will be ok .All thing are possible when you have God.
PS.Patsy thank you and your friend for the train bank Tyty loves it.we are saving cans selling them and putting the money in his bank for a trampline he wants.Maybe that will help his legs later.Thank all that have sent cards and mail Tyler loves it.BUT MOST OF ALL THANK YOU FOR THE PRAYERS . PLEASE KNOW THAT WE LOVE YOU ALL

Friday, April 27, 2007 2:14 PM
Hello .Well we are back home from Charleston .A little up set because they keep saying the same darn thing .They had Ashley sign the forms for Tyler’s surgery and said that they are Sceduling it .As all ways they will call in a few weeks.Doctor oneal said that they are going to have to Contac doctor Day and make sure every one still agrees with the whole team.This was already suppose to have been done He said that they are worried about hitting the nerve in Tyler’s jaw and that this would be bad .Tyler would really be messed up for life the surgery will take at least sixteen hrs and could take up to twenty four hrs .He said also that there are only 2 or 3 other doctors in the world that have performed the surgery that Tyler had on a 2 year old so the don’t really have a guide to follow.That this surgery was going to be a rough one.I ask if Tyler could die having this surgery and he said yes .That Tyler may not have a trach but would have his jaw wired .That he will be using the fibula bone from the other leg unless something changes before surgery.He said that while in surgery they will get the doctors to remove the pin from the first leg they done.He said that Tyler needs something done.If you don’t do it, he can’t eat or breathe correctly if you do it, he may die or be paralyzed..plus he will be in pain the rest of his life…..and the Doctors don’t agree on the treatment!
Poor Tyler…..I wonder why his leg is bothering him so much??
He also said that he knows Tyler was hurting but he don’t think this will take all the pain away .He said that Tyler will always have some pain.He is having trouble eating he chews and his hole jaw moves in a round motion ,He has to gum most his food.But has learned to eat a few different things .He has only a couple teeth and the roots are all dead and they are going to come out in surgery also.
I told doctor Oneal that I think they need to get something done. We are tired of going to doctor after doctor. being told the same thing .That we live a long way from Musc hospital and that it takes a lot of money to travel there.and have to stay two three days .That they have been planing this surgery a long time now.I think that they have held off doing the surgery as long as they can And Tyler is really having a hard time with all this.This trip in gas was ninety dollars and the motel was sixty nine plus food for two days.Now we are home waiting to see what they say next And waiting for the surgery date .
Tyler’s uncle Jermey is trying to get a web benefit started for Tyler and our family if you would like to find out about it please click own the hulk banner own Tyler’s page please please pray for Tyler and our family.This is something that affects the whole family .The cancers in remission.But the after affects are worst than the cancer .Its all in Gods hands .So I will just trust in him and known that thing s will be ok .All thing are possible when you have God.
PS.Patsy thank you and your friend for the train bank Tyty loves it.we are saving cans selling them and putting the money in his bank for a trampoline he wants.Maybe that will help his legs later.Thank all that have sent cards and mail Tyler loves it.BUT MOST OF ALL THANK YOU FOR THE PRAYERS . PLEASE KNOW THAT WE LOVE YOU ALL

Monday, April 23, 2007 5:49 PM CDT

Hello
Well time is almost here we will be taken tyty to see the surgeons again on the twenty fith and twenty six.Tyler was talking to my friend .We had to ask three times before we could understand what he was saying.Hes having a hard time chewing his food up .His leg and his jaw are still hurting him.and he continues having to take his pain medications.His little face is drawing more to one side .
I pray that the surgery will help him .That they get everything arranged this time.Tyler really needs something done.am calling tomorrow to try to get a motel at hospital prices. Also thank you pat for the bank tyty loves it .and thanks to the lady that sent Tyler the games for his hand helt game boy ,now he wont get bored own the long ride to Charleston.please keep praying for Tyler.when he has this jaw replacement its going to be really hard own him and our whole family .he also has a pin in his other leg that must come out soon .we are going to try to get it all done while hes in the operating room.god has been with us and with your prayers and my faith we will get through this.
Well I need prayers also for me I know that you all may think AM crazy to have done this but I have taken a another child into my home .it is a new born and belongs to my granddaughter ,shes not able to care for it right now . I couldn’t see it left in a foster home .it was in there a month . I went to court and got temporary custody .I don’t have much but I have a lot of love and can give this child a good home.and share what little I do have. It is five week old little boy .His name is Justin Nathan Burnett.I prayed a long time before I decided to do this but I feel in my heart it was the right thing to do .I no it will be hard .when I picked the little fellow up he was sick and we had to go to the ER .He was put in
The hospital for 4 days.Had a bad virus, tempture.Tyler all ready loves him .Jayden just smiles and can not keep his hands off the baby.well just wanted to ask that you all pray for me that god will guide us in all that we do with Tyler and the new baby.Tyler standing here telling me to tell you all he loves you.We appreciate all you do for Tyler and our family .

DARLENE AND TYLER

,April 13 2007 1:24 PM CDT

Tyler cried all night with his leg hurting wasn’t able to go to school.He tried to chew a rice crispy treat and couldn’t do it his jaw is getting worst he says it hurts him.Took him a very long time to eat the treat.He will be seeing doctor here in Greenville Monday.still will go to Charleston on the twenty six.About his jaw surgery.Thank all the ones that have put money in the pay pal acc.Thank you for helping Tyler and his family.Thank s for all the cards and gifts Tyler looks forward to the mail he loves it. and appreciate it all.please most of all pray for Tyler and our family that’s the most important thing .

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