Archive for 2008

Hi Everyone,

Welcome to Tyler’s new Caringbridge page. Tyler’s Grandmother, Darlene asked me if I would help create a new Caringbridge page for Tyler, so that is why I am doing the update today.

Tyler is having scans today to send to Maryland so they can study them and try to find a way to fix his jaw. He has an appointment next Friday at Shriners about his leg. Please pray that the doctors at Johns Hopkins can find a way to fix Tyler’s jaw.

Please sign Tyler’s guestbook and let him know what you think of his new page.

Thanks, Jaime Quilts Of Hope

Hi Everyone,

We have never and will never give up! Tyler has scans here at Greenville tomorrow. They will be taken of his jaw and head. Scans will be sent to the Doctor in Maryland who is going to study them and try to come up with a way to help Tyler. We are hoping that they will be able to do some kind of Titanium Jaw (if it can be done) and a hinge. I think we found the right Doctor and Hospital.

We might have to go stay in Maryland for a few months that will be okay if it helps Ty-Ty. Thank each of you that helped with getting Tyler to John Hopkins. You know who you are. Also, thank you Joe for all your help and caring about our family. You’ve got to be the worlds greatest therapist. You are so much appreciated!

Please keep praying for Tyler. He’s still got a long ways to go. I think we are own the right track now. It’s all in Gods hands.

Hi Everyone,

Well, our trip was long and tiring. They told us just what MUSC had said; that there just are not many options left for Tyler. They said they could use a hip bone and do another jaw replacement if the bone was big enough, but that they can’t promise it will work. The doctor said he couldn’t believe that both the fibluas had died in Tyler jaw; said he had never had one die. He said Tyler has to go to MUSC on the 15th for scans of his jaw (because medicaid wouldn’t pay for them to be done in Maryland) and get them sent to him. He said he will to do a study on Tyler’s jaw and try to come up with something. I wish they could use my bones. I would give them to Tyler.

We are not letting them take any more bones from Tyler; he’s had too many taken all ready. So it’s in God’s hands. Keep praying!

Tyler still has trips every month to MUSC to see the leg doctor and the ear doctor and also sees doctor Oneal, even though he says that there are no doctors in SC that can help Tyler. He says its still important that he sees him. He also has to see doctor Davis about Tyler’s teeth… well gums. He has only a few teeth that are falling out.

Keep praying we love you all!

PS WE DON’T KNOW ANY THING THAT WE DIDN’T ALL READY KNOW! WHY CANT THEY JUST MAKE A PLASTIC JAW? WHEN I ASK, THEY SAY IT WONT WORK.

Hi, Everyone,

We leave tomorrow to take Tyler to Maryland to see the doctors at John Hopkins. Please pray that they will be able to help him, and for a safe trip. My grandon said he will house sit for us while we are gone and take care of things around here.

I hope you all had a wonderful Thanksgiving. We did, and had so much to be Thankful for. God is awesome and I praise Him and thank Him for all he has done in my life. I asked each of the grandchildren what they were thankful for on Thanksgiving day and every one of them said, “We are most thankful for you, Nanny.” That made me feel so good!

THIS IS TO THE PERSON THAT WROTE THE MEAN MESSAGE ON TYLERS GUEST BOOK THAT I REMOVED.

THIS CHILD IS SICK THAT HAS BEEN THROUGH YEARS OF PAIN NEEDLES AND SUFFERING. HIS MOM CANT WORK BECAUSE HE IS SO SICK HE CANT GO TO SCHOOL AND SHE HAS A TWO YEAR OLD. TYLER TRAVELS TO MUSC TWO THREE TIMES A MONTH. ALSO HAS APPOINTMENTS HERE AT HOME. SO NO ONE WILL HIRE HER. AS FOR ME I HAVE A SEVENTEEN MONTH OLD GREAT GRAND SON THAT I AM RAISING. WOULD YOU LEAVE YOUR BABY AT HOME NOT KNOWING WHEN YOU WILL RETURN? MY HUSBAND HAS HAD A STROKE. ITS MY RESPONABILTY TO CARE FOR BOTH OF THEM. I TAKE ASHLEY AND TYLER TO ALL THE MEDICAL APPOINTMENTS BECAUSE THEY HAVE NO CAR THAT WOULD MAKE THE TRIPS.

I LOVE TYLER AS MY OWN AND WOULD GIVE MY LIFE FOR HIM. I HAVE HAD YARD SALES SOLD MY THINGS FROM MY HOUSE AND HAD BENEFITS USED ALL MY SAVINGS WITH ALL THE TRAVELING AND MEDICAL TREATMENTS TYLER GOES THROUGH I CAN’T MAKE ENOUGH MONEY TO GET TYLER TO ALL THE MEDICAL TREATMENTS HE NEEDS. MEDICAID DOESN’T PAY FOR EVERYTHING. YOU MUST NOT HAVE A CANCER CHILD OR YOU COULDN’T HAVE WRITTEN THE THINGS YOU SAID. PLEASE DON’T WRITE IN TYLER’S GUEST BOOK AGAIN UNLESS YOU WANT TO PRAY FOR HIM. WE ARE HURTING ENOUGH. WE ARE WORRIED SICK ABOUT TYLER. HAVE YOU WATCHED YOUR CHILD ON HIS DEATH BED OR HEARD HIM CRY NIGHT AFTER NIGHT FROM PAIN OR COULDN’T EAT AND CRY BECAUSE IT HURTS SO BAD TO CHEW HE HAS NO JAW BONE OR TEETH? CRY BECAUSE HE SAYS HE’S NOT LIKE OTHER KIDS AND SAYS MOMMY AND NANNY PLEASE DONT LET MY BROTHER HAVE SURGERY? OR HAD PEOPLE STARE AT YOUR CHILD BECAUSE HE HAS SO MANY SCARS AND HIS LITTLE FACE IS GOING SIDEWAYS? HAS YOUR CHILD HAD 33 SURGERIES, LOST A JAW BONE AND LUNG TO CANCER, HAD BONES TAKEN FROM HIS LEGS? THIS IS ONLY PART OF WHAT HAS HAPPEN TO TYLER. IT HURTS MY HEART TO THINK THAT YOU WOULD THINK I AM TAKING ADVANTAGE OF THE SYSTEM. I AM SO SORRY YOU FEEL THAT WAY. I WOULD DO WHAT EVER IT TAKES TO SAVE MY GRANDSON.

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