Archive for September, 2008

Hi, Tyler’s surgery went okay; he was in surgery about two hours, thirty minutes. Dr. Oneal took out a piece of metal and three screws. He said we may have to bring Tyler back and do more because his jaw may hurt worse. He said to bring Tyler home; Ashley knows how to take care of him. His jaw doesn’t look too good. Last night, Tyler told me not to worry. He said, “It’s ok, Nanny. I don’t mind. It wont hurt bad.” He then gave me the biggest hug. I love him with all my heart.

Dr. Oneal said that he had been on the phone for hours trying to find someone that could fix Tyler’s jaw, but hasn’t found any one. They won’t take the medicaid. He said that he’s not giving up on Tyler; that he’s going to keep trying. He said that he could go back and take a hip or rib and try again, but it would fail so he doesn’t want to do it. That is also what Dr. Marx was going to do and Dr. Oneal says it just wont work for Tyler.

This has been 29 surgeries for Tyler. With out some one taking the Medicaid at south Carolina rates, Tyler won’t get a doctor to fix his jaw. It’s really all about money. This is getting worse every day. I fear for the worst. Tyler needs a special surgeon not a cancer doctor. The cancer is in remission, but the aftermath of the cancer monster is awful. We are left with nowhere to turn. Isn’t there just one doctor out there that would help this child out of the goodness of his heart? I pray we get some answers before its to late for my little Tyler.

We have Contacted Medicaid and yes they will pay for us to go somewhere. The thing is, they won’t pay what that state’s Medicaid pays, so they wont take Tyler. Please pray about this and for Tyler. His jaw is hurting really bad right now. Tyler’s having to take really strong pain medication. Thank all of Tyler’s angels that love and care about him. You know who you are we love you all so much. Your prayers and support are why Tyler is here today. God has listened to every one of those prayers.

Heres a list of surgeries:

    Tyler has had
    1]surgery that found tumor
    2)surgery to debulb tumor
    3)4 ports put in
    4)4 ports taken out
    5)1st jaw reconstruction
    6)2nd jaw reconstruction
    7)right upper lobotomy
    8)g-tube
    9)another g-tube
    10)j-tube
    11)tracheotomy
    12)surgery to close g-tube hole
    13)surgery to close j-tube hole
    14)surgery to close tracheotomy hole
    15)mouth wired shut 2x
    16)mouth unwired 2x
    17)screws put in right leg
    18)screws put in left leg
    19)surgery to fix screws left leg
    20)tubes put in ears
    21)hole fixed in right ear drum and tube removed
    22)part of bone and plate removed in jaw
    23)screws and part of plate removed from jaw
    24)minor teeth surgery 2x (to remove bad teeth and abscesses). All roots are dead in what few teeth Tyler has.
    25)surgery to remove packing from ear and clean it

Also chemo and radition
Comes up to a total of 34 surgeries

SEND SNAIL MAIL
TYLER TUCKER C/O DARLENE COX PO BOX 14386 GREENVILLE SC 29610

THIS IS STRESSFUL,EMOTIONALLY,FINANCIALLY

Tyler Tucker, Medical Fund-Foundation
TYLER’S PAY PAL ACCOUNT: Tyler Tucker Foundation

ALL FUNDS ARE USED FOR TRAVELING EXPENSES, MEDICAL BILLS, AND THERAPY SUPPLIES FOR TYLER. THANK YOU. PLEASE KEEP SIGNING TYLER’S WEB PAGE AND STORMING HEAVEN FOR HIM. WE COUNT EACH TIME GUEST BOOK IS SIGNED AS A PRAYER. IT MEANS A LOT TO TYLER’S FAMILY

Hello,

Sorry for all the slow updates, we are getting ready to have Tyler’s benefit at our church. It’s 4:30 in the morning here and I can’t sleep. I sure hope things go well. We will have to stop and get things cleaned up around 2:00. They’re having services for a baby that passed away around 5:00. We just thank God that we are able to have the benefit sale. Our church has been just wonderful. I thank God for such a wonderful church family and for all of you; your love and support.

Tyler will be having surgery again on his jaw at MUSC Hospital of Charleston on Monday morning. Once again, we will be making the long trip back to Charleston. They did this a little while back and removed some bone that was sticking through his skin. Now the metal plate is sticking through and it is hurting him to eat or talk so they have to take it out. The doctor said that it’s according to how Tyler does if he will be in the hospital afther surgery or sent back home. They will be cutting his jaw again. It doesn’t seem to even matter to Tyler. He’s like, just go ahead and get it over with. What a trooper he is! Please pray that he will be okay and for our family.

Tyler needs a surgeon to fix his jaw, but so far they haven’t found one that thinks he can do it. I would cut my arm or leg off if I could make it all better. Gosh how I wish we were rich. Bet I could find Tyler a doctor then. I am so afraid he’s going to end up on a feeding tube or even worse. He’s my heart. Tyler’s birthday is Oct 9th and mine is Oct 6th. I can’t belive he’s going to be eight! I don’t know how many pictures I’ll be getting of Tyler. He’s getting where he doesn’t want them taken because of his scars. He’s still a nice looking little boy. Nathan and Jayden are growing, getting so big; also little sweet heart.

PLEASE KEEP VISTING AND SINGING. TYLER’S PATH IS STRESSFUL, EMOTIONALLY, FINANCIALLY.

Tyler Tucker,Medical Fund- Foundation
TYLER’S PAY PAL ACCOUNT: Tyler Tucker Foundation




ALL FUNDS ARE USED FOR TRAVELING EXPENSES, MEDICAL BILLS, AND THERAPY. IT MEANS SO MUCH TO US. WE LOVE YOU ALL!

Hi,

Everything is okay for now around here. Tyler can hardly eat, but is managing to get a few things down. It’s just that his mouth is so sore. His jaw and his legs Have been hurting him. He’s taking his pain medication and that is helping. I took him to the dollar store yesterday and he bought himself and Jayden a few things. They played all day on the deck and Tyler had a wonderful pain-free day. Thank you Jesus.

We haven’t heard from Dr. Oneal yet. He’s suppose to be trying to find a doctor to Help Tyler. Please keep Tyler in your prayers. Unless they find help for Tyler, things can only get worse for him. We need a miracle for Tyler before he ends up on a feeding tube. We have appointments coming up at MUSC, just because they want to keep an eye on Tyler’s jaw. The bone has died and now they say that they are not going to address Tylers jaw any more for fear of making things worse; that there is no doctor in SC that can do what Tyler needs done. Tyler needs a surgeon to fix his jaw, not a cancer doctor.

Medicaid said that they would pay for Tyler to have it done in Texas, but then Texas wouldn’t take Tyler, after saying they would, because Medicaid pays a lot more in Texas. So we don’t know what to do. It seems like some of the doctors don’t even care. All I can do is to do what I have done for the last five years: leave it in God’s hands.

Tyler will be having a birthday October 9th. He will be eight. We are not having a party. He wants to go shopping. Tyler has a wonderful friend named Steven that sent him some money to go shopping. He says he’s going to buy a new game for his xbox 360. THANK YOU STEVEN FOR LOVING TYTY.

There’s a lot of people that love Tyler and have helped; you know who you are and we thank each one of you and love you all. Tyler loves all the snail mail. Thank you all for putting a smile on his face. I thank god each day for all our angels that have helped us so much. God bless you all.

BECAUSE OF TYLER BEING IN THE HOSPITAL, HIS BENEFIT SALE WILL BE THE 20TH AT OUR CHURCH. I PRAY THAT WE HAVE A NICE DAY AND MAKE SOME MONEY FOR TYLER’S MEDICAL EXPENCES.

THIS IS STRESSFUL, EMOTIONALLY, FINANCIALLY
Tyler Tucker,Medical Fund- Foundation
TYLER’S PAY PAL ACCCOUNT: Tyler Tucker Foundation

ALL FUNDS ARE USED FOR TRAVELING EXPENSES, MEDICAL BILLS, THERAPY

Hi Everyone,

Tyler’s benefit sale was postponed until Saturday the 20th and will be held at New Life Baptist Church, across from West Side Park, here in Greenville, SC.

Tyler has been in the hospital but is doing better now. Keep praying please!

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