Archive for October, 2008
Tyler has done really well this week. He has had a pain free week, Thank God. We haven’t heard anything from Dr. Oneal yet; hoping to hear soon. I heard that John Hopkings was a great hospital. Maybe the doctors there will be able to help Tyler. Thank each of you that have sent snail mail.
Tyler was one of the children that was child of the month on make a child smile. He has received lots of cards and sticker and has enjoyed all of them. You all are wonderful and so caring God bless each of you. Pat, thank you for the movie you made of you and the kids and all the movies you sent Tyler. He loves you and was happy to see you on the movie. That was an awsome thing to do. Tell Amanda and Blake Tyler watched it and waved at them. Tyler says thank you for the well wishes. We are taking one day at a time and leaving Tyler in Gods hands. Please keep storming heaven for Tyler with prayers. God hears those prayers.
Thank all of you that have helped with gas and food to go to MUSC Hospital with Tyler. It’s eight hours round trip. We appreciate you so much. Tyler wouldn’t been able to get there if it wasn’t that you all cared so much. We have another appointment on Nov 12th to see Dr. Gross. He’s the leg surgeon. Tyler had a wonderful birthday thanks to Steven who sent him some money to go shopping and to Trisha who sent a great birthday box and Trisha with a 360 game.
Tyler’s growing up. He’s eight now and has all ready asked for a laptop. I been looking, but don’t think we will be able to get it for him. The cheapest I found was four hundred and ninety ninety dollars. We sure can’t afford that. He will understand and be happy with what he gets. I just worry too much.
I want to ask that you all put Carol Cox in your prayers. He’s Tyler’s great grandpa. He has cancer and is in really bad shape they cant give him any more chemo and the cancer is growing its in his stomach and hip and legs.
Hi, just got back from MUSC. I think Tyler’s going to be going to John Hopkins Hospital in Maryland. Ashley signed releases today of records, so I pray it all works out. A letter I received from John Hopkins Hospital is pasted at the bottom of the page.
Tyler has a lot of pain in his neck. He’s on strong meds and his leg is hurting. We go back to MUSC, I think its the 15th.
Dr. Redett, Dr. Tufaro and possibly Dr. Rodrieguez of Johns Hopkins Hospital may be able to help Tyler. Dr. Redett is a pediatric plastic surgeon, Dr. Tufaro is an oral surgeon and a plastic surgeon who specializes in cancer of the head and neck. And Dr. Rodrieguez is also a plastic surgeon. All 3 surgeons have a great bedside manner and are willing to help Tyler. They would need to see Tylers medical records prior to scheduling an appointment . If you can get a complete record of his history, past surgeries and any recent CT scans or MRI’s. They would need to see the actual studies (CD OR FILMS) not just the reports from the scans. Our address is:
Dr. Richard Redett
601 N. Caroline St
Baltimore, MD 21287
As long as your insurance approves you to come out of state for treatment, the surgeons are willing to treat Tyler.
We look forward to receiving Tyler’s records and eventually meeting him.