Archive for November, 2008

Hi, Everyone,

We leave tomorrow to take Tyler to Maryland to see the doctors at John Hopkins. Please pray that they will be able to help him, and for a safe trip. My grandon said he will house sit for us while we are gone and take care of things around here.

I hope you all had a wonderful Thanksgiving. We did, and had so much to be Thankful for. God is awesome and I praise Him and thank Him for all he has done in my life. I asked each of the grandchildren what they were thankful for on Thanksgiving day and every one of them said, “We are most thankful for you, Nanny.” That made me feel so good!

THIS IS TO THE PERSON THAT WROTE THE MEAN MESSAGE ON TYLERS GUEST BOOK THAT I REMOVED.

THIS CHILD IS SICK THAT HAS BEEN THROUGH YEARS OF PAIN NEEDLES AND SUFFERING. HIS MOM CANT WORK BECAUSE HE IS SO SICK HE CANT GO TO SCHOOL AND SHE HAS A TWO YEAR OLD. TYLER TRAVELS TO MUSC TWO THREE TIMES A MONTH. ALSO HAS APPOINTMENTS HERE AT HOME. SO NO ONE WILL HIRE HER. AS FOR ME I HAVE A SEVENTEEN MONTH OLD GREAT GRAND SON THAT I AM RAISING. WOULD YOU LEAVE YOUR BABY AT HOME NOT KNOWING WHEN YOU WILL RETURN? MY HUSBAND HAS HAD A STROKE. ITS MY RESPONABILTY TO CARE FOR BOTH OF THEM. I TAKE ASHLEY AND TYLER TO ALL THE MEDICAL APPOINTMENTS BECAUSE THEY HAVE NO CAR THAT WOULD MAKE THE TRIPS.

I LOVE TYLER AS MY OWN AND WOULD GIVE MY LIFE FOR HIM. I HAVE HAD YARD SALES SOLD MY THINGS FROM MY HOUSE AND HAD BENEFITS USED ALL MY SAVINGS WITH ALL THE TRAVELING AND MEDICAL TREATMENTS TYLER GOES THROUGH I CAN’T MAKE ENOUGH MONEY TO GET TYLER TO ALL THE MEDICAL TREATMENTS HE NEEDS. MEDICAID DOESN’T PAY FOR EVERYTHING. YOU MUST NOT HAVE A CANCER CHILD OR YOU COULDN’T HAVE WRITTEN THE THINGS YOU SAID. PLEASE DON’T WRITE IN TYLER’S GUEST BOOK AGAIN UNLESS YOU WANT TO PRAY FOR HIM. WE ARE HURTING ENOUGH. WE ARE WORRIED SICK ABOUT TYLER. HAVE YOU WATCHED YOUR CHILD ON HIS DEATH BED OR HEARD HIM CRY NIGHT AFTER NIGHT FROM PAIN OR COULDN’T EAT AND CRY BECAUSE IT HURTS SO BAD TO CHEW HE HAS NO JAW BONE OR TEETH? CRY BECAUSE HE SAYS HE’S NOT LIKE OTHER KIDS AND SAYS MOMMY AND NANNY PLEASE DONT LET MY BROTHER HAVE SURGERY? OR HAD PEOPLE STARE AT YOUR CHILD BECAUSE HE HAS SO MANY SCARS AND HIS LITTLE FACE IS GOING SIDEWAYS? HAS YOUR CHILD HAD 33 SURGERIES, LOST A JAW BONE AND LUNG TO CANCER, HAD BONES TAKEN FROM HIS LEGS? THIS IS ONLY PART OF WHAT HAS HAPPEN TO TYLER. IT HURTS MY HEART TO THINK THAT YOU WOULD THINK I AM TAKING ADVANTAGE OF THE SYSTEM. I AM SO SORRY YOU FEEL THAT WAY. I WOULD DO WHAT EVER IT TAKES TO SAVE MY GRANDSON.

Hi Everyone,

Tyler has an appointment December 2nd, at John Hopkins Hospital in Maryland. We will be driving, if I can come up with the money for gas, motels and food. Just wanted to let you know, please pray they can help Tyler!

Tyler is in remission from cancer, but it could be back at any time. It has left him with so many complications. It has been a Nightmare for years. Please say prayers for all the families that have not been as lucky as us and have lost children to this disease. My heart truly breaks for each and every one of them and for all the families still fighting. Hug your children and let them know how much you love them as life is so precious and we know that first hand. You must make each moment with them a memory that you will have forever. When someone in a family has cancer, The Entire Family has Cancer. It is so hard when it is a child. If it has never happened in your family, “Thank God”. This is a MONSTER. I do not understand the reason. God does, and we will never doubt His Will. We know there is a reason and we will know some day. I thank god each day for Tyler. If we have to do this over, he’s worth it all. I would be right there for Tyler, and Ashley and Jayden.

Please pray that his scans stay clean and that we find a doctor that can do his surgery with out paralyzing Tyler’s face. I just know that the doctors in maryland can help Tyler.

Hi everyone,

Had to go to MUSC Hospital yesterday with Tyler. He had two appointments; took all day getting up at six and returning home at ten last night. Tyler saw Dr. White, the ear doctor. He had a test done and found out that he has loss of hearing now in both ears. So, we have more appointments to have more tests, then off to see the doctor about the legs. He’s the one that took the bone from both legs for Tyler’s jaw, Dr. Grose. Well, he says he doesn’t know why Tyler’s legs are hurting so much. He gave him more pain medication and a bigger shoe for his brace. I hope this helps. Anyway, we ended up with five appointments coming up at MUSC of Charleston.

Tyler’s jaw is looking really bad. We have heard from a Doctor at John Hopkins Hospital in Maryland. He said that he needs to get Tyler’s last scans and that they are going to try to fix Tyler up. I pray they will be able to help him. We went in to eat and I looked at Tyler and he had turned his chair around to the wall so the people couldn’t see how he has to chew his food.

Yesterday we stopped to feed the kids and this lady kept staring at Tyler. Ashley says mom why can’t she stop looking at him. All i could do was to keep my mouth shut. I wanted to say something so bad.

Thank each of you for being Tyler’s angels. We wouldn’t be able to get Tyler the help he needs so much if it wasn’t for your love and support. You all now who you are and we appreciate you and thank God for each of you. God will bless you all. I say a lot of prayers and I thank God for all of you. I also thank God for being the awesome God He is. I know that they say God doesn’t put more on you than you can take. Well, he must have a lot of trust in me. Each day I praise him for that. Please keep praying for Tyler and our family. Tyler still has a long way to go, but with God I now all things are possible.

THIS IS STRESSFUL,EMOTIONALLY,FINANCIALLY

A MESSAGE FROM MAKE A CHILD SMILE

People in general, are worrying about a lot of things right now… But remember one thing… TIME, for kids battling a serious illness, DOESN’T STOP!! No matter if the world is coming to an end, if the President is Black or White, Blue or Red, if the economy is good or bad…. Those kids STILL have to undergo chemo, radiation, doctor’s appointments, throw up, have a fever, miss school, etc….

So PLEASE don’t forget to send them your love and support by mail… something they can hold, cherish and know you care.

And most importantly, PLEASE ask friends, family and co-workers to come visit MACS and send mail to the kids. If you rallied to friends and family to vote for Obama or McCain, you can ask them to come to MACS, can’t you?? Word of Mouth can do miracles. From one person it goes to 3, then to 7, then to 10, and so on…

Hello everyone,

Great news, Tyler has had another week of very little pain (Thank God!) Your prayers are being heard. Taking those metal plates and screws out helped with the pain. Now there’s nothing there to hold the jaw, so when he tries to eat his mouth goes in a circle motion. That, and only a few teeth, makes it really hard for Tyler to eat. We haven’t heard from John Hopkins in Maryland yet; hoping to hear soon MUSC Hospital has all the paper worked signed and said that they will have all the paper work done and sent to Dr. Redett next week. Then it will take them a while to go over them and let us know if they think they can help Tyler. Please pray about this. I pray that we have fond some one that can help TyTy .

We go back to MUSC to see Dr Gross (he’s the leg doctor) and then to see Dr. White, the ear doctor. Tyler still can’t hear out of one ear.

Tyler was one of the sponsored children on “Make a Child Smile” for October. He received tons of cards and stickers and that has really kept him smiling the whole month. I want to thank all of you you know who you are. You were a blessing! Also thank you to all that sent us gas cards and money for gas. It is so much appreciated. Tyler may have not gotten to his appoints 4 hours away from home if you all didn’t care. Thank you for loving Tyler and caring about our family.

Also Christmas will soon be here and we will be asking that some one adopt Tyler and his brother for for Christmas. We will need help with all the traveling we have to do with Tyler to MUSC Hospital and doctor visits. So also pray about this.

THIS IS STRESSFUL,EMOTIONALLY,FINANCIALLY

A MESSAGE FROM MAKE A CHILD SMILE
People in general, are worrying about a lot of things right now… But remember one thing… TIME, for kids battling a serious illness, DOESN’T STOP!! No matter if the world is coming to an end, if the President is Black or White, Blue or Red, if the economy is good or bad…. Those kids STILL have to undergo chemo, radiation, doctor’s appointments, throw up, have a fever, miss school, etc….

So PLEASE don’t forget to send them your love and support by mail… something they can hold, cherish and know you care.

And most importantly, PLEASE ask friends, family and co-workers to come visit MACS and send mail to the kids. If you rallied to friends and family to vote for Obama or McCain, you can ask them to come to MACS, can’t you?? Word of Mouth can do miracles. From one person it goes to 3, then to 7, then to 10, and so on…

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