Archive for December, 2008

Hi Everyone,

Welcome to Tyler’s new Caringbridge page. Tyler’s Grandmother, Darlene asked me if I would help create a new Caringbridge page for Tyler, so that is why I am doing the update today.

Tyler is having scans today to send to Maryland so they can study them and try to find a way to fix his jaw. He has an appointment next Friday at Shriners about his leg. Please pray that the doctors at Johns Hopkins can find a way to fix Tyler’s jaw.

Please sign Tyler’s guestbook and let him know what you think of his new page.

Thanks, Jaime Quilts Of Hope

Hi Everyone,

We have never and will never give up! Tyler has scans here at Greenville tomorrow. They will be taken of his jaw and head. Scans will be sent to the Doctor in Maryland who is going to study them and try to come up with a way to help Tyler. We are hoping that they will be able to do some kind of Titanium Jaw (if it can be done) and a hinge. I think we found the right Doctor and Hospital.

We might have to go stay in Maryland for a few months that will be okay if it helps Ty-Ty. Thank each of you that helped with getting Tyler to John Hopkins. You know who you are. Also, thank you Joe for all your help and caring about our family. You’ve got to be the worlds greatest therapist. You are so much appreciated!

Please keep praying for Tyler. He’s still got a long ways to go. I think we are own the right track now. It’s all in Gods hands.

Hi Everyone,

Well, our trip was long and tiring. They told us just what MUSC had said; that there just are not many options left for Tyler. They said they could use a hip bone and do another jaw replacement if the bone was big enough, but that they can’t promise it will work. The doctor said he couldn’t believe that both the fibluas had died in Tyler jaw; said he had never had one die. He said Tyler has to go to MUSC on the 15th for scans of his jaw (because medicaid wouldn’t pay for them to be done in Maryland) and get them sent to him. He said he will to do a study on Tyler’s jaw and try to come up with something. I wish they could use my bones. I would give them to Tyler.

We are not letting them take any more bones from Tyler; he’s had too many taken all ready. So it’s in God’s hands. Keep praying!

Tyler still has trips every month to MUSC to see the leg doctor and the ear doctor and also sees doctor Oneal, even though he says that there are no doctors in SC that can help Tyler. He says its still important that he sees him. He also has to see doctor Davis about Tyler’s teeth… well gums. He has only a few teeth that are falling out.

Keep praying we love you all!

PS WE DON’T KNOW ANY THING THAT WE DIDN’T ALL READY KNOW! WHY CANT THEY JUST MAKE A PLASTIC JAW? WHEN I ASK, THEY SAY IT WONT WORK.

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