Archive for April, 2009
Hello, Tyler is still having so much pain in his legs and jaw. He hasn’t been able to go to school. When he gets there, they call for us to come get him. Tyler’s surgery is about eight weeks away. I pray that this will help his jaw and he will be able to eat, that maybe his trainer, Joe, will have some answers for his legs.
I have contacted the social services at John Hopkins to try to get an angel flight for Tyler and his mom and me, but I have not heard back from them. We found childcare for the babies while we are in Maryland for the surgery. I know Tyler will be needing our attention.
It will be hard to leave the little ones at home. Nathan is so sweet. He’s a good baby. Jayden and Ethan are also little sweet hearts (all boy). Please keep us in your prayers. Tyler needs them and our family needs them.
This is all so stressful. Please pray for all the others out there that are hurting that are watching their child suffer. Even if the cancer is in remission, some of the children still go through so much. This will be the thirty seventh surgery for Tyler. God bless, we love you all.
Tyler is having a really hard time. He can hardly eat and his legs are hurting him badly. We took him to school yesterday but he was only there a few minutes. Tyler had to take medication for pain before he went to school and it made him sick, so his teacher gave him a cracker the cracker hurt his jaw trying to chew it so they had to call us to come get him.
We notified his dentist and she said until he gets his jaw surgery she can’t do anything to his mouth and we should take him to the ER. Ashley told her that they would just give more pain medication and send him home. He has pain medication already. Dr. Oneal was called he said he will have to readmit him and put a feeding tube in if he does not start eating. Give it a little while, try to get him to eat something. He does not want to put a feeding tube in before Tyler’s surgery if he can help it.
Next step, called Hopkins’s and was told to try to get something in him even if it was soup; that they really need to try to wait till his surgery date if they possibly can. Darn. This morning, same thing. Tyler wakes up four in the morning crying with leg pain. D.r Gross says he does not understand why his legs hurt. I can. The screws are loose and the bones are gone.
I really worry about Tyler he only eats a few things now and he can hardly eat at all. His little face is getting worse. I pray that this surgery is the answer and that we will be able to get him there. THIS IS STRESSFUL, EMOTIONALLY, FINANCIALL, so please put our family and Tyler in your prayers. As my friend from Courageous Kidz always tells me: put it in God’shands and it will all be okay.
We love you all and if you want to send Tyler a card please send to
TYLER TUCKER C/O DARLENE COX
PO BOX 14386 GREENVILLE SC 29610
Hello,Tyler recived his paper work for Johns Hopkins. He gets his new jaw on June the 16th. I still think this is the answer for Tyler. God has answered my prayers. This will be a long surgery and could take as long as fifteen hours.
Please keep praying for Tyler. He has been having a lot of pain in both his legs and jaw. Also his hip hurts. He takes motrin but has prescription medication when he needs it. Thank all of you for the snail mail. Tyler still loves getting mail. Thanks to you Lash for helping us. You are a blessing. Something I was told from a dear friend was, “When you have faith and trust in God, it always works out.” God bless each of you. We love you.