Archive for May, 2009

With Tyler’s surgery approaching fast, we still have no idea where we will stay or how we will pay for the cost. I have put it in Gods hands.

Tyer is still in a lot of pain, but he is eating a little better. He still has to take a lot of pain medication, which breaks my heart. It is a shame for a little guy like Tyler to have to take all those pain medications. It makes him hyper-active, but it does help a lot with the pain.

It seems so wrong that he should need so many operations; this is number 37! But I know it is necessary for him to have any kind of real life and be able to eat normally. Right now, Tyler weights 58 pounds. He should weigh around 89 pounds. He will still need more surgeries as he gets older. After the surgery, Tyler will still need after care at the Hospital in Charleston, so we will be making a lot of trips up there.

The surgery will take between 15 and 18 hours. I am asking for your prayers for Tyler. Please begin a chain of prayers for him!
I have prepared the things you all have sent for Tyler, like coloring books and crayons, so he can have something to do at the hospital. Tyler still loves getting snail mail, so please keep those letters coming. Thank you all so much for your support. We love you all!

TYLER TUCKER C/O DARLENE COX
PO BOX 14386 GREENVILLE SC 29610

Hug your children, tell them you love them every chance you get.
Remembe?r that children are a gift that is given to us and we need to make every moment a memory and never take anything for granted.

THIS IS STRESSFUL EMOTIONALLY AND FINANCIALLY.

PLEASE KEEP SIGNING TYLERS WEB PAGE AND STORMING HEAVEN FOR HIM. WE COUNT EACH TIME GUEST BOOK IS SIGNED AS A PRAYER. IT MEANS A LOT TO TYLERS FAMILY.

A prayer from a friend for Tyler:

Dear Lord I ask that You place Your healing hands upon sweet Tyler and help him get rid of any sickness his little body is fighting right now. Please Lord he needs You so much right now. Send down a few extra angels to make sure he is protected from anything that might jeopardize his full recovery. He is fighting so hard Lord and I know only You really know the true extent of it but I have so much faith that You will come through for him.

Please Lord I am begging along with so many others for a miracle with little Tyler’s name on it. I know only You have the power to give this little boy back his life Dear Lord and I am asking You to do just that. Let him be healed and give him the chance to lead a healthy, long life.

Dear Lord he has already suffered so much and I just pray that You keep the cancer in remission and show the doctors that miracles are real and they happen everyday to sweet boys like Tyler.

Please Lord give Tyler a chance to spread the word about miracles from Heaven and give him a chance at a real life. Only You can give him this gift. In Jesus’ name I pray, Amen.

Wednesday, May 6, 2009 12:19 PM, CDT
UPDATE: Turns out Angel Flights will not be a option so we will drive there.

So we move on from one thing to another!

The social worker called, as did Angel Flights. We were accepted, as long as the weather is good and there is no problem with the pilots being out sick. We are only allowed to take 25 pounds of luggage on board for all three of us! There is just no way for us to manage that. The plane is really small and can only take so much weight. If I had some flyer miles, I would use those. Maybe if I wasn’t so fat!

Anyway, it looks like we will have to drive instead. That way we will have a way to get around when we arrive in Maryland. The social workers are trying to get us a children’s house for a place to stay, but there is no guarantee. I am concerned about what it will cost us to stay down there.

The social workers says it is much more expensive there than here in Greenville. Motels cost $89 per night, even with a hospital discount. Staff at the hospital pays $100 a month just to park. We will be there for a week or two, so the cost could run in the high hundreds. Not quite sure how we will manage to pay for that.

Whatever it takes, I have to be there with Tyler. His surgery will be 15 to 18 hours long. It is scheduled for June 16th, six weeks from now. They told us that Tyler will probably need a tracheotomy and a feeding tube. I really hope we can get by without the tracheotomy. That is so painful for him and he is already in so much pain.

Please help us out if you can. Here is the address:
TYLER TUCKER C/O DARLENE COX
PO BOX 14386 GREENVILLE SC 29610

P.S. Just let me know if you need the phone number for Angel Flights. I’ll send it right over to you.

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