Archive for June, 2009

Hello everyone,

Well, it’s been 12 days and no word from Johns Hopkins about Tyler’s surgery. The Greenville news is still trying to contact Dr Rodriguez’s because they have to talk to them before they can run the artical on Tyler in the paper. Dr. Rodriguez’s sectary said that they are trying to get Johns Hopkins hospital to reverse the decision and accept Tyler’s medicaid. She said it would take a little while and that I should not give up.

Tyler is still hurting in his jaw and leg and still taking a lot of pain medication. His new jaw is made and aiting for him at Johns Hopkins. Did you all know that there are only about two or three doctors that can do what Tyler needs done to his jaw? I feel that these doctors can fix Tyler’s jaw. I pray that we can get this done for Tyler to have a normal life. It just wasn’t meant to happen on the 16th of June. Only God knows why. I was so up set but know that I need to be counting my blessings and be grateful that Tyler is here with us, There are a lot of kids a lot worst than Tyler out there. A lot of family’s don’t have there babies .Thank you all for your prayers and donations. What money he has is in the bank and will not be used except for Tylers medical needs; for Maryland Johns Hopkins or MUSC Hospital, which ever one he needs to go to.

Tyler has to stay under a doctors care at all times. Thank you for the card and letters this is so much appercated. It helps so much to know you care. So from the botton of my heart, thank you. Please sign Tyler’s guest book to let us know you were there, and most of all, please keep Tyler and our family in your prayers.

*THIS IS STRESSFUL,EMOTIONALLY, FINANCIALLY
SEND SNAIL MAIL:
TYLER TUCKER C/O DARLENE COX
PO BOX 14386 GREENVILLE SC 29610*

Tyler’s family would like to thank all who have donated to help Tyler and his family. They would also like to clarify, for those who donated to CaringBridge.org, how those donations are used.

When you donate at the CaringBridge website, the donations are used to keep the site going for the wonderful services they provide to families struggling will serious illnesses. The site connects families and brings them comfort and hope in hard times. Below is a statement from CaringBridge about how the funds are used:

Your gift supports the mission of CaringBridge: to bring together a global community of care, powered by the love of family and friends, in an easy, accessible and private way. While funds are not provided directly to families, your gift helps those using the free service stay connected while they heal.

When donations are made through TylerTucker.com, they go directly to Tyler’s family to help with medical care and traveling costs. This gives the family the vital funds they need so Tyler can see his doctors, who are three hours away from his home.

Thank you again for all of your love, support and prayers.

SURGERY IS ON HOLD FOR NOW

Hello,

Bad news. I am sitting here tears running down my face; I can’t stop crying. Poor Tyler, I had a call from Maryland Johns Hopkins Hospital. They will not accept out of state Medicaid. We were told that they have to cancel Tyler’s surgery. What’s left? What else can we do??? It took over a year to get this surgery!

We were packed and ready to get in the van when we get a call from Dr. Rodriguez’s office. First we were told that Dr. O’neal hadn’t sent his paper work to the Medicaid office; so we got on the phone to Dr. O’Neal’s office. Thankfully, he got on the ball and faxed everything that was needed and within hours, a lady by the name of Mavis had it approved.. Well, we are ready to go once again and then another call from Dr. Rodreiguez’s office telling us they wouldn’t accept SC Medicaid. Dr. Rodriguez is going to try a higher official and get the decision reversed, BUT, that may take a month or longer.

How could they do this? They had already made Tyler’s $2000 jaw. I was told by the secretary Courtney that Dr. Rodriguez will be calling me. We are devastated! We have letters saying that no Doctor in SC can help Tyler We also have an email note from Dr Rodriguez’s office saying that they will accept SC Medicaid if Medicaid will pay for Tyler to be taken out of state. Now all at once Johns Hopkins won’t take SC Medicaid. I know that God has a reason for everything but I just don’t understand; Tyler needs help and we are running out of options.

Tyler has no Doctor. Because of his 37 surgeries no one is willing to treat him. Dr. O’neal and Day have already given up on Tyler; they say that there is nothing else they can do. So we don’t know where he will get his pain medication. He has refills for only two more months. Eating hurts Tyler and he wakes up kicking the walls some nights in pain he lives on pain medication. His little legs hurt for hours afterwards when he goes out to play. He would like to be able to jump on a trampoline or wrestle and play with his brothers. But he has to be careful because his bones are soft and break easy. He just wants to be a normal little boy.

The Greenville News is coming on Monday to do a newscast about Tyler. Just maybe a doctor here in Greenville will see it and know how to help TyTy.

I want to thank all of you that helped with money and gas cards for Tyler’s trip to Maryland. You gave us piece of mind that we could make this trip and not have to worry about lodging, food and gas. I PRAY Maryland changes its mind and does surgery on TyTy, I promise I will be keeping all the money in Tyler’s account. It will not be spent except for medical care for Tyler. We know that with our this surgery Tyler has a very limited future.

Thank you for your prayers for Tyler. Also please say a prayer for me that my health will stay good, so I can be here for Tyler. I went to the doctor and was put back on blood pressure medication. All this has been so stressful.

Donations for Tyler can be taken to any South Carolina Sun Trust Bank. Give them the name Darlene Cox for Tyler Tucker. It will be put in his account. You can also use PayPal, using my email address (click on the “Donations” tab).

Hello,

Well it’s seven more days till Tyler’s surgery. I want to ask that all of you please keep Tyler and our family in your prayers.

I known that God has been with us through 36 surgeries and he won’t let us down on number 37. Tyler told me he wasn’t afraid. I told him I was glad and if he wasn’t scared then I wouldn’t be. I told Tyler that I would get my strength from him because he’s so strong and brave. What a trooper!

As I look at Tyler and his little skinny fifty-eight-pound body, his little face, and think about the way he can’t sleep at night. He can hardly eat and his little legs are giving so much pain. I feel that this operation is the right decision. It’s our chance to give him some kind of normal life. I want him to be happy, play, jump, run and smile; go to school like other children his age do. It seems like all he does is sit playing video games and watching movies.

I have told his mom, Ashley, he doesn’t need to be playing video games all the time but, she says there’s not a lot he can do…without his legs or his jaw hurting him.

I want to thank each of you that have helped to see that Tyler gets to Maryland to have his surgery…it dosnt matter if you donated a dollar or a hundard dollars it is all appreciated. Thank you for your cards and books, movies and games. Tyler loves getting snail mail. There’s not a lot that makes him smile but getting mail does!

Donations for Tyler can be taken to any South Carolina Sun Trust Bank. Give them the name Darlene Cox for Tyler Tucker. It will be put in his account. You can also use PayPal, using my email address (click on the “Donations” tab).

We have a gas card that was sent to us.

THIS IS STRESSFUL,EMOTIONALLY, FINANCIALLY
SEND SNAIL MAIL:
TYLER TUCKER C/O DARLENE COX
PO BOX 14386 GREENVILLE SC 29610

I want to take a minute and thank a few people that brought a tub to my house to soak and message Tyler’s legs. This was a wonderful thing to do for Tyler and it is helping him.

Thank you Joe, Deddie, Mr. Banks and Steven. Thank you for Loving and caring about Tyler.

Its helping with the pain, Thank God.

Prayer works so please storm heaven for Tyler. He’s going to have a rough week next week.

We love you all.

To receive blog updates please register with the website click here to register It’s quick, and very easy.

Note to myspace friends:
Just wanted to let everyone from myspace know we are trying to keep all the communication and comments on this page. The reasons why is due the fact with myspace I have to go through a BUNCH of spam, and it takes hours to get anything done. I also want to make sure everyone gets a response to questions or comments. Which I couldn’t deliver at myspace cause it was only one person managing his account. Here I’ve invited more of our family so we can all help respond, and manage things. This does mean myspace questions, or comments will rarely go answered, sorry. So for future Tyler updates, and comments please bookmark this page.

If you have any questions feel free to ask!

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