Archive for 2010

Hello,

Wishing for a Happy New Year for all of you. Hoping you all had a wonderful Christmas. Thank you all so much. You made Tyler and his brothers have such a wonderful Christmas.

Tyler loved the TV and all the other things he got. He’s a special little boy. He told me not to forget to thank everyone. Too many to mention all the names, but you know who you are, so thank you so much!

Tyler also got a DVD player. Now his room is all set up so that when he has his jaw surgery on March 27th28th, he will be able to lay in his bed, watch movies, and play his games. What a blessing! Jayden got his remote car and lots of other things. Ethan got lots of baby toys and a ride on-car.

My children all showed up and we had a wonderful dinner after saying a prayer to think God for all he provides, and for blessing us with a great Christmas. We also played Dirty Santa (Yankee Swap to some of you) and had a wonderful time. Each person brought a $10 gift for the game. So everyone got a gift had a good time.
Tyler’s angels really did a great job seeing that he was taken care of. Tyler got lots of cards and loved them.

I’m so blessed to have you all and my grandkids. Time is passing so fast. March will be here soon and Tyler will have to have his jaw surgery. Please keep praying for him. He needs those prayers. I wish he didn’t have to have this surgery but I know he must.

We will leave on March 25th surgery March 27th28th. We had snow for Christmas. Tyler went out but didn’t like it because it made his legs hurt. God bless you all. We love you ALL.

Hello,

I talked to Dr. Rodriquez. He is concerned about Tyler’s jaw he said that he is still hoping to do the surgery March 25, 2011. [The surgery date has been changed to 3/28 at 7:30 am. -JB]

He said that if Tyler gets to hurting or cannot eat he will have to do it earlier. He doesn’t want Tyler on a feeding tube, so the titanium jaw has to come out. He is setting up the surgery now so we will know when we have to be there. He talked about using bone in the jaw and removing the flap. He also said something about pulling the jaw to the other side.

I don’t understand what that was about. All I know is that my boy still has so much to go through. Dr. Rodriguez said he would just bring us to Maryland and do all this in one trip instead of making a trip to see him and another for surgery. Gosh March is just three months away. Please pray that Tyler will be OK and pray for me and Ashley this is so hard to watch TyTy go through this.

Dr. Rodriguez is awesome he cares about Tyler he donates his services but there are many other charges that we still owe. Medicaid pays some on the hospital but won’t pay the higher South Carolina prices, which leaves a balance for us. Last surgery we owed $2,000 after surgery. Thanks to some caring people that love Tyler, that has been taken care of. Two thousand wasn’t much considering what the surgery cost. The Howling Wolf Bar and Grille held a benefit for Tyler last Saturday (Thank You!) and raised some money to put in Tyler’s surgery account. It will help so much, but there will still probably be a balance to pay after the surgery.

Please sign TyTy’s guest book. It means a lot. Thank you all that are seeing that Tyler and his brothers have Christmas. We are blessed to have you in our lives.

I told Dr. Rodriguez that I truly loved him for all he does for Tyler, and he said, “I love you to sweetheart.” Now, how awesome is that?

Tyler is not in school today. He is hurting in his jaw and having trouble eating, He is eating…thank God for that. Pray that Tyler won’t have to live on a feeding tube. His legs are giving him a fit hurting because of the cold weather and the fibula being taken from both his legs.

I have my faith and know that god will be with us as we take Tyler for surgery number 45. How much more can this little boy take?


FROGgin’ (F.R.O.G. – Fully Rely On God)
for

Tyler


Tyler Tucker c/o Darlene Cox
PO BOX 14386
Greenville, SC 29610

Hi,

Flash and Tyler

We went to Charleston to Pins and Pizza Party for Cancer Kids on the weekend. It was really great and Flash did a wonderful job, there were chicken wings and pizza drinks fries cake all you wanted to eat and more, and we got to spend the night motel furnished. It was Tyler’s first time bowling and he loved it. he dost get to do things like that much.

We were also treated to a wonderful breakfast before leaving to come home. Courageous Kidz is a wonderful organization and they have helped Tyler so much. Thank you Flash for loving not only Tyler but also all your kids. We were also so happy to see all the families there. These families have touched our hearts in one way or another, and all have or have had children with cancer.

Tyler has been hurting when he eats, it may be getting worse; his jaw is turning again. I have not heard from Dr. Rodriguez, but called again for him to call me. We are still seeing doctors a lot here in Greenville. Tyler goes to the endocrine doctor on the 20th (I think). Not only has his endocrine system been affected by radiation therapy (because radiation for his jaw tumors also damaged parts of his brain), but he also has weak bones, another common late effect of chemotherapy. Taking bone from another part of his body might not even work.

We can only pray and trust in the power of god and the strength of your prayers. Tyler still doesn’t want any more bones taken from him. He will end up on a feeding tube and unable to use his mouth and jaw if he doesn’t have the surgery in March. So please pray for Tyler. He still has so much suffering he has to go through.

We were told that Tyler would get his wish for Christmas…the TV. And there are some others that will also be helping with the boys for Christmas. Thank you all so much, you are surely a blessing to Tyler and his family. You know who you are thank you from the bottom of my heart. Without your kindness, the boys would not have a good Christmas. You are his angels.

But most of all, let’s remember that Tyler needs your prayers. We thank God for all of you. Please take a minute and sign Tyler’s guest book here or at Caring Bridge. It means so much to our family to know you were here. And Tyler still loves all the cards. Thank you for them. It puts a smile on his face.

I want to thank God that he has put each one of you in our lives and that Tyler and his brothers have been taken care of. This has been a long journey and Tyler still has a long way to go. He cannot make it without your love and support, we love you all. The address is below if you want to send Tyler or his brothers a card.


FROGgin’ (F.R.O.G. – Fully Rely On God)

for

Tyler


Tyler Tucker c/o Darlene Cox
PO BOX 14386
Greenville, SC 29610

Hi everyone,

Tyler has had a lot of leg and jaw pain lately. He says his jaw hurts when he eats. His mom, Ashley, said she saw the x-rays and that his jaw was really in a mess. I have tried to get in touch with Dr. Rodriguez, but he’s off teaching, so it will be after the holidays before he calls. Tyler will have to see the jaw doctor here in Greenville. The trouble is that he cannot do anything to the jaw except look at it and give medication. Tyler sees the leg doctor on December 5th (I think that’s the day).

The colder weather is not good for Tyler. He needs to get outside but wont he wont to sit in the house, says his leg and jaw hurt when he’s out in the cold. His mom and dad don’t have a car so they don’t get to go to the movies or anywhere else unless I take them, but they are happy kids. Dad hasn’t been able to find a job in about nine months now. Still, God has provided. I fussed a lot at him because it worried me so much that he wasn’t working, but he really is trying to find a Job. We live eight miles from anywhere, here in the woods. Anyway, things are okay and they are making do. No unemployment because he got fired from Walmart because he stayed home to keep the other children when Tyler had his jaw surgery. Some people said they couldn’t fire him for that…well they did.

I have been trying to arrange Christmas for the three boys and Nathan. Can you believe Nathan is going to be four in march? Tyler is already 10 and Jayden is 4. Baby Ethan is already 2. Tyler hasn’t asked for much except the TV and someone said they will get it for him. Gosh they are growing up way too fast and as you all know they are my life. I couldn’t love them any more than I do and I thank God each day for them. Even with Tyler being sick, he’s the highlight of my day. I love him so much. I still tell them ever day that I love them because no one knows what tomorrow will bring…and when I get those little hugs, it’s all worth everything I do for the boys.

Hi everyone,

Tyler has had a lot of leg and jaw pain lately. He says his jaw hurts when he eats. His mom, Ashley, said she saw the x-rays and that his jaw was really in a mess. I have tried to get in touch with Dr. Rodriguez, but he’s off teaching, so it will be after the holidays before he calls. Tyler will have to see the jaw doctor here in Greenville. The trouble is that he cannot do anything to the jaw except look at it and give medication. Tyler sees the leg doctor on December 5th (I think that’s the day).

The colder weather is not good for Tyler. He needs to get outside but wont he wont to sit in the house, says his leg and jaw hurt when he’s out in the cold. His mom and dad don’t have a car so they don’t get to go to the movies or anywhere else unless I take them, but they are happy kids. Dad hasn’t been able to find a job in about nine months now. Still, God has provided. I fussed a lot at him because it worried me so much that he wasn’t working, but he really is trying to find a Job. We live eight miles from anywhere, here in the woods. Anyway, things are okay and they are making do. No unemployment because he got fired from Walmart because he stayed home to keep the other children when Tyler had his jaw surgery. Some people said they couldn’t fire him for that…well they did.

I have been trying to arrange Christmas for the three boys and Nathan. Can you believe Nathan is going to be four in march? Tyler is already 10 and Jayden is 4. Baby Ethan is already 2. Tyler hasn’t asked for much except the TV and someone said they will get it for him. Jayden asked for a remote control truck and someone is getting that for him also. Baby Ethan just don’t care and Nathan hasn’t asked for anything.

Gosh these kids are growing up way too fast and as you all know they are my life. I couldn’t love them any more than I do and I thank God each day for them. Even with Tyler being sick, he’s the highlight of my day. I love him so much. I still tell them ever day that I love them because no one knows what tomorrow will bring…and when I get those little hugs, it’s all worth everything I do for the boys.

Please keep praying for Tyler and our family. God hears those prayers. Tyler must go under the knife again. Hoping it can wait till March because he doesn’t want to do this. He does not want them taken his hip bone to put in his jaw. But if we don’t, he’s going to end up on a feeding tube for the rest of his life. So he has to do it. This will be just one more of many more surgeries to come for Tyler. Also our trips to Charleston MUSC Hospital have slowed down and we don’t have to go there but two times a year. Now everything is moved to Maryland and Greenville.

Now for me. I don’t have the e coli anymore. The last test showed clear. I go see the doctor for another test on Nov 30th and I still have to see the specialist to find out why my body wouldn’t except the antibiotic. Your prayers worked and I think you all from the bottom of my heart, Thank you!

Tyler still loves getting the snail mail. God bless you all that send mail to him. It puts a smile on Tyler’s face. The address is at bottom if you would like to send a card and make Tyler smile, or send one to Jayden Ethan, or Nathan.

We hope everyone has a wonderful Thanksgiving. Don’t eat too much, and I also wanted to say that this is one Thanksgiving that I have so much to be thankful for. After seven years of struggling, dealing with Tyler’s cancer and the aftermath of cancer, I still have my boy with me.

GOD HAS GIVEN US SO MANY BLESSINGS

God bless, we love you all.

ONE MORE THING. SAY A LITTLE PRAYER FOR TYLER’S MOM, ASHLEY. SHE BEEN THROUGH SO MUCH.


FROGgin’

for

Tyler


Tyler Tucker c/o Darlene Cox
PO BOX 14386
Greenville, SC 29610

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