Archive for August, 2010

Darlene recently came across this video on the youtube childhood cancer channel featuring Tyler’s story. It’s current to approximately late last year. Since this video was made, Tyler has undergone five more procedures, including the placement of a titanium jaw.

We are now even more concerned about Tyler’s health, after a recent bout of scarlet fever accompanied by a rash. We are waiting the biopsy results from the dermatologist. Please keep praying for Tyler. According to the information here, most children with Tyler’s cancer don’t make it five years past the date of diagnosis. Our little trooper has made it almost eight years. Keep praying with us!

Hi everyone,

Well it’s been a long hard week. Our journey with Tyler seems to get better then worse. We have been to the doctor every day this week. Tyler went to see Dr. Olson first because he was having a hard time and could hardly swallow with the pain. He had a rash all over him and wasn’t feeling good at all. His skin was peeling off him.

Dr. Olson said he had strep and that she thought the rash was from that. Well then he said his jaw was hurting and he couldn’t swallow, so back to the doctor. They wanted him to see Dr. Pye, the skin doctor. By this time Tyler was really broken out and peeling really bad. We got there and she said that sometimes leukemia can have a rash like this, so she did a biopsy and took a chunk from Tyler’s stomach.

Tyler screamed during the biopsy because it hurt and the doctor was not sympathetic at all…told him to stop that or he was going to make her stick herself (Tyler should have such problems). He would not have said it hurt if she wasn’t hurting him He ended up with four stitches that will have to be taken out in two weeks.

Anyway, we have to wait two weeks for results. I pray its not cancer. It also could be a lot of other things. She gave us cream to cover his body twice a day. It’s like Vaseline [ yuck ]. He has not been able to return to school.

We went home and got a call from Ashley. She said the air conditioner had made a great big pop. George went down to Tyler’s house and the air conditioner was smoking. Called out a repairman and the darn thing has seen its last days. Couldn’t be fixed and it would cost $3,500 to get a new one (August in SC is no time to be without AC).

The next day on the way to the doctor again, the air conditioner man called back and said after seeing Tyler, there was no way he was charging for his part and would get it for $2,300. Big discount, yes, but where’s the money coming from? So that means no air. That won’t be good for Tyler at all. Can you imagine having that rash and no air? I just have to put it in God’s hands.

Then were were off to see Dr. Bedrux, Tyler’s jaw doctor. He said that he can see and feel Tyler’s jaw pulling to one side that he has to call Dr. Rodriguez in Maryland. There was nothing he could do here in SC to help Tyler. Now we are waiting to here from Dr. Rodriguez. Tyler is now back on pain meds.

After the doctors visit, all four boys were starving so we were off to feed them. Tyler got sick at the Golden Coral, with the other three screaming to stay and eat [ geez! ].

So, Monday we are all ready to start again. Time to see Dr. Becks, the leg doctor who is suppose to set him up for surgery on his legs.Tyler is limping once again. He is also walking bow legged and on the sides of his feet, saying that his legs hurt.

THROUGH ALL THIS I AM BLESSED TO HAVE TYLER WITH US TO BE ABLE TO DO MY BEST FOR HIM AND GIVE HIM MY UNCONDITIONAL LOVE. TO KEEP MY FAITH AND KNOW THAT WHEN THE DEVIL DISHES IT OUT GOD IS THERE TO PUT US BACK ON TRACK.

Photo from Tyler's last surgery in June.

One more thing…Tyler’s mom also suffers and needs your prayers. She’s an awesome mom. Can you imagine having to go through this with your child? Sometimes Jayden feels left out, being too little to understand all that’s going on.

I watched a movie last night called “Letters to God.” It was about a little boy named Tyler that had cancer. I couldn’t finish it. It was too much like what we are going through, except he had a brain tumor. If you have a child with cancer or in remission from cancer, I wouldn’t watch this movie. I had to turn it off. It just made me cry.

Thank you all for your love and support for Tyler. We love you all. He really enjoys all the snail mail. It makes Tyler smile. Thank you for all the cards that children have made for him in bible school. May God send his blessings to each and every one of you.


FROGgin’

for

Tyler


Tyler Tucker c/o Darlene Cox
PO BOX 14386
Greenville, SC 29610

Please pray for Tyler. His face is pulling sideways again. This picture was taken today.


FROGgin’

for

Tyler


Tyler Tucker c/o Darlene Cox
PO BOX 14386
Greenville, SC 29610

Hello Everyone:

Tyler got sick last week. He said his stomach hurts and that he feels like he’s going to throw up. He also broke out with a rash all over. We thought he must have a stomach virus. He was better on Monday so he went to school. But he came home today with the rash again and he said that his stomach hurts.

He has appointment eight in the morning to see the family doctor. When you have a child that has had cancer the first thing you think is cancer. I pray not. I will let you all know what his doctor says. Tyler has to go to musc cancer clinic for a heart test on September 13th and they will also be checking his ear that had a hole in the drum to see if he can still hear. At one time he couldn’t hear out of his right ear. He has an appointment with the leg doctor September 26th to set up leg surgery and another appointment in August to check on his jaw. Tyler is eating but not gaining weight…he’s still about 59 pounds. His doctor isn’t happy about that. He looks so, so skinny and his legs are hurting him again. Their is just never an end, but we are so lucky that Tyler is doing as well as he is. God’s with him.

I want to thank Uncle Jermey for his love of Tyler, for fixing Tyler’s computer and all that he does to help Tyler.

Tyler wants to go eat hot chicken wings, so I think we will get up money to take him to do this with his brothers. I don’t no how he eats it with no teeth, but he does.

Tyler’s school is going to help with getting things he can eat so he will be able to eat at school. Thanks once again to Steven, for getting the parts to fix Tyler’s computer. He’s Tyler’s guardian angel and is always there for TyTy.

Stevens son must be so proud of his dad, o care of a child like Tyler the way he does. He’s got to be one heck of a dad to his boy. God bless you Steven.

Tyler is in third grade and growing so tall. He will be 10 years old on October 9th, and has been through so much in his short life time. He really is a trooper.

Tyler wants me to ask that you pray for him and that you sign his page. We count that as a prayer for TyTy. Thank each of you for the card and books, stickers and gifts that have been sent. Tyler loves his snail mail. Thanks to a man named Frankie and his wife Cathy. They came up with $100 and put in Tyler’s account for him. Lord we sure need it.

We have to spend so much on gas and food for the boys while at the doctors. I have a bill here for $2,000 that has to be paid before Tyler can have his next surgery. Medicaid didn’t pay that much on his hospital bill.

Not to fuss, but can you just imagine how much that surgery was for? A titanium jaw, and then to have to go back in to his jaw to remove packing, and straighten his jaw. Tyler must be a million dollar miracle boy. Forty-one surgeries is a lot for such a little boy.

They are planing a another cruise in for Tyler at the Little Rebel in Greer

SEPTEMBER 18TH 5-9
LEEANN AND HELEN LOVE TYLER AND WANT TO HELP HIM

GOD BLESS WE LOVE YOU ALL

****Up Date******

We just got back from the doctor. Tyler has strep that has turned in to scarlet fever. That’s what the rash is. He also has a bladder infection and some other infection that they don’t know what it is. They sent it to be cultured.

Prayers need for Tyler…his little face is swollen and red. He is very contagious and won’t be able to go to school. Please pray for Tyler, and I know our little hero will be feeling better in no time!


FROGgin’

for

Tyler


Tyler Tucker c/o Darlene Cox
PO BOX 14386
Greenville, SC 29610

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