Archive for October, 2010
Just a short update:
Tyler has been doing well the last few days he’s even been able to go to school. His teacher is wonderful, she even props his legs and feet when he hurts and she ask him all through the day if he wants to eat. She sure takes good care of Tyler. I want to thank some really wonderful people from the Howling Wolf Bar and Grill and my dear friend Cathy, her husband, and son Mathew. They are just so caring and have been raising money for Tyler, putting it in his account for his surgeries. Thank each of you, you’re awesome!
Tyler will be having one not too far off, but he will have to have lots of surgery, all in Maryland. Tyler’s journey is still so long and he will need your prayers, love and support to get through this. He’s just such a sweet little boy. May God be with Tyler and our family as we try our best to do what he needs. Tyler’s jaw is still hurting, some days worse than others. He’s just playing his games and making the best of things. Thank God, Steven got him the PlayStation and games. He smiles a lot playing the games. You all are angels that have watched over Tyler.
As far as me, I’ll be OK. Went for cultures yesterday and will go back Tuesday for more. The medication is so strong, it makes me sick and makes my back and ribs hurt, but I have to take it. However, I believe in God and I believe he’s going to heal both Tyler and me. I won’t let the devil win. Tyler is my grandbaby, I love him, and I won’t let the devil destroy him or me!
He tries but God is with us I have my faith. We will both be OK. Thank you all for all your prayers love and support. We love you all! I will update more in a week or so… not feeling so good now.
Tyler Tucker c/o Darlene Cox
PO BOX 14386
Greenville, SC 29610
Hello all. I’m writing to let you know that Darlene is very sick and needs your prayers. They have been so powerful and helpful for Tyler in the past. Now Darlene, who has doted on Tyler every step of the way, needs your strength.
She wrote me today letting me know that she has a serious infection that the doctors have been unable to cure. She has been ill
with a cold e coli for about six months. They have tried several antibiotics but none have worked. If this new medication doesn’t work, the infection may reach her blood stream, which would most certainly end her life.
Doctors are watching her and she may need to be admitted to the hospital for IV antibiotics. Please pray for her healing. She describes you all as the angels that have watched over Tyler and I ask that you take some time to watch over Darlene right now. Thank you all for your prayers. I’ll be praying right along with you!
Well I guess you all are waiting for an update on Tyler. He’s sick he has a fever and feels really bad. Both his brothers are sick also with fever and running nose. Tyler has been hurting in both his legs and jaw. I think it’s the colder weather. It’s hard for him to swallow his food.
I am praying we will be able to wait a while before his surgery. He still doesn’t want the surgery. He said they are not taking any more of his bones. But if not then, he will get where he wants…to be able to eat. Gee this is so upsetting. They are planning on using the hip bone this time to replace the jaw. Dr. Rodriguez said that the metal in Tyler’s jaw is going to have to come out. It’s slipping because of other medical conditions.
We want Tyler to play and get through Christmas before his surgery. Please pray that he will be able to wait, maybe to March. That’s when Dr Rodriguez has said that he hopes to be able to do it, so Tyler will get to go to school a while.
HE HAS A WONDERFUL HOME BOUND TEACHER, BUT WE ARE TRYING TO SEND HIM TO SCHOOL AS MUCH AS POSSIBLE.
Tyler had a wonderful birthday thanks to all you caring people. I had a yard sale for Tyler and did really well. I put every penny into Tyler’s account because he will have so many medical expenses. I have two thousand to pay the hospital before his next surgery. Thanks to all the people that love Tyler I have that now. It makes a huge difference because SC Medicaid won’t pay what Maryland Medicaid pays, so we owe the two thousand. With the money from the yard sale and the cruise-in I can pay it with a small amount left to go to Maryland again. Thanks to everyone that has helped us. You all have been so wonderful. Without your help, Tyler couldn’t get the medical treatment he needs.
We have appointments on the 25th to see the family doctor and on the 26th for the leg doctor. I have an appointment tomorrow for myself. Family papa had an appointment today. He has to have an MRI. They think he has a slipped disc. God, I hope not. That will mean papa will have to have surgery.
Nathan will have tubes put in to his ears on the 25th and adenoids taken out. Gees theirs always a doctor’s appointment!
Please keep us in your prayers.
Tyler has ask me for a small flat screen TV for his room for Christmas so he can lay in his bed and play his games when he has to have his surgery. I am going to somehow try to get this for him. Jayden had asked for a remote control truck he says, “Nanny, that’s all I want.” Bless his little heart; I love these boys so much.
I WILL UP DATE MORE LATER. TYLER NEEDS YOUR PRAYERS THIS NEXT SURGERY WILL BE A HARD ONE.
WE LOVE YOU ALL. YOUR KINDNESS HAS KEPT TYLER SMILING. HE LOVED ALL THE BIRTHDAY CARDS.
Tyler Tucker c/o Darlene Cox
PO BOX 14386
Greenville, SC 29610
Leeann sent some pictures from Tyler’s birthday party. She noted that “He seemed to be having fun and being able to be just a child…Sure was nice to see him be able to smile. Thanks again for allowing us to be part of Tyler’s life. He has won our hearts.”
I think there are many of us who feel the way Leeann does! We love you Tyler!
I noticed that Tyler got his wings after all…Darlene mentioned that he had a wonderful time and even had a buddy to play with. I don’t think I’ve ever seen him smile so big! Here are the photos…
Tyler got some bad news just before his 10th birthday. Darlene is very upset and having a hard time explaining the problem, so I am stepping in to be the voice of the family. Ashley and Tyler are in Maryland right now following a visit to his jaw doctor, Dr. Rodriguez.
Those of you who have been following know that Tyler has been in remission from cancer for many years. He is still in remission, but the late effects of cancer treatment are now catching up with him. Tyler was diagnosed when he was only 2 years old.
Radiation and chemo therapies work by attacking cells that multiply at faster than normal rates. In a small child, many healthy types of cells are multiplying quickly too, not just cancer cells. Kids who have radiation treatment in the head and neck area are more susceptible to problems that emerge years after radiation therapy. This is what Tyler is going through now.
The family found out yesterday that Tyler is going through puberty early, and he’s not even ten years old. The growth spurt brought on by the change has made it necessary to perform another jaw surgery years before it was expected. He only had the titanium jaw placed this year, after months of battles with Medicare. Now it has to begin all over again.
To add to the frustration, they will need to take bone from Tyler’s hip to do the surgery. He has already had multiple surgeries that took bone from his shins, resulting in many complications that put him in pain all the time with his legs. He has been in and out of wheel chairs and now he’ll have to go back in. Tyler does not want to go through another surgery that requires them to take bone from another part of his body.
Cancer has robbed Tyler of his childhood. Before he was old enough to remember he was in cancer treatment. The late effects have haunted him all his life, stealing any chance for a normal childhood. Now his childhood is ending early.
I simply can’t imagine a life where I never had a chance to be a kid at all. Even with the tough upbringing I had, there were times when I was able to just be a kid and play in the yard with no worries. Tyler has never had that experience and it just never seems to end. The kid just can’t catch a break.
Not only have has his endocrine system been affected by radiation therapy (because radiation for his jaw tumors also damaged parts of his brain) but he also has weak bones, another common late effect of chemotherapy. Taking bone from another part of his body might not even work. We can only pray and trust in the power of God and the strength of your prayers.
Clearly, prayer works. Tyler has beat all odds, living now 3 years longer than any other child with his diagnosis. With Tyler’s kind of cancer, remission is a high likelihood, but he is still cancer free. He has also dodged cancers that can be brought on by the radiation therapy tiself.
These facts remind me that maybe Tyler has caught a break, if only we can remember the positive things our prayers have accomplished. Remember these things when you pray and ask God to help Tyler and his family through this difficult time. Thank you all so much!