Archive for March, 2011

Update on Tyler…Thursday, March 31, 2011

by Cathy Culpepper on Thursday, March 31, 2011 at 9:52pm

Tyler is having a hard day today. He is swollen badly but the doctor said this is expected for a few days. He has been throwing up due to his body adjusting to the medicine he is taking and probably from some of the after effects of the surgery. There has been blood in it where Tyler has swallowed to keep from choking. He has also had blood dripping from his mouth due to the jaw surgery. This is normal for a few days but not easy to watch.

Due to the swelling of his jaw, he is unable to eat. Right now all he is eating is jello and it hasn’t been much of that. The hospital will not release him to the Ronald McDonald House until he is able to eat something on his own. This could be as early as Friday or Saturday afternoon.

Tyler’s leg is doing fine so far. Today the nurse put him in a hospital wheelchair and let him sit in it for about 10 minutes. He did well. Tomorrow they will try again several times throughout the day.

Tyler has not complained one time. He tries to talk to his Mom and his Nanny but with the swelling it comes out as mumbling. They have been able to understand him and it’s always “I’m ok” or “I love you”.

Ashley, Tyler’s Mom, is doing a lot better now. She talked to her husband and the other two children at home are doing well. Dad is taking good care of them.

Nanny….well she is worried about how they will get Tyler home to South Carolina. The plane is not equipped to transport him back so George and Nathan may have to make the 12 hour trip and bring everyone back home in the van.

On top of that, they haven’t been able to get Tyler a wheelchair to bring home that will support his right leg being kept straight. Darlene, hospital, and Ronald McDonald House is trying to find one. He will need it for 6-8 weeks at least, if not longer.

Everything has worked out thus far so the family has hope that these 2 issues will work themselves out too.

Tyler loves to receive mail. He can receive cards if you would like to send him one. The address is:

Tyler Tucker

c/o Ronald McDonald House

635 West Lexington Street

Baltimore, MD 21201-1571

Thank you goes out to everyone for your prayers and love you have shown this family during this difficult time. Please continue to pray for Tyler as he still has a long way to go.

~I must apologize to all for being late on this update. Here’s what’s going on with Tyler…One of the family’s friends sent this information…Jess~

Here’s an update for all the wonderful, loving people who are praying for Tyler and his family. They got up this morning and Tyler was smiling big. He told Nanny that he was ready. He took a bath and they headed for the hospital. Before going in, he gave her and his Mom the biggest hug and told them again, he was ready. He entered the operating room with a smile.

Several hours later, someone came to update them and told them that once they got Tyler into surgery, plans changed. They did not take his hipbone as originally planned. Darlene said they would find out why once everything is over. Instead, they put in 2 metal rod stabilizers to keep Tyler’s leg straight and took some bone marrow from his leg. His leg must be straight for 6-8 weeks for healing. He cannot stand on it, go to the bathroom, or go to school. He must stay in a wheelchair for the 6-8 weeks with his leg straight out. The leg cannot be bent or it will break his femur bone and all this will have to be done again.

After putting the two metal rod stabilizers in his leg, jaw surgery would be next. They were told that bone marrow was taken from his leg to put in his jaw. They will remove all the old metal from his jaw and replace it with new metal and the bone marrow. It is going to be a long night for everyone. She estimated it may 10pm or later before they know anymore. As of right now, Tyler will not be able to ride the plane home from Maryland. His leg must be kept straight out and the plane does not have the room for this. Pray something can be done to help ease his ride home…but that won’t be for awhile.

George may have to drive from South Carolina to Maryland and pick them up in a van. We are unsure of this right now. Darlene asked everyone to add a special prayer for Ashley (Tyler’s Mom). She is having a hard time. I can’t imagine going through this and knowing there are two more children at home who need her too….ages 4 and 2. Lift her up in your prayers. That’s all I know right now. Darlene sounded positive but very tired. She picked on me once before she hung up and it made us laugh so hopefully her spirits are still up.

Hello everyone,

This will be the last update until we are in Maryland. We leave here on Sunday. I will relax and spend some special time with Tyler before he has his surgery on Tuesday the 29th…I will be with him no matter what. I told Nathan I had to go to the hospital with Tyler and would be gone a while. He looked straight at me and said, “No, no, stay here. I need you.” It breaks my heart to have to leave him. But I know he will be in good hands with George my husband and Fay the lady at the nursery who will also be helping out with Nathan. Richie, Tyler’s dad, will be keeping Tyler’s brothers Jayden and Ethan.

I just wish I could make it all better for Tyler and make it go away. I know I will be doing a lot of praying and crying because I worry so much, but God has my hand. They are taking all the metal and undoing all that has been done. They will be replacing the prior work with hipbone, so that’s going to mean a sore hip afterwards. His jaw hurts, and he is having leg pain, so he wasn’t able to go to school today.

Please pray for Tyler. This is going to be really hard on him and Ashley and myself. I know that God will be with us through this. Please everyone pray for my boy. Pray that he doesn’t have a lot of pain and that he’s not in the hospital long. I went out and got him some PJ’s today, three pairs so he would have them to wear in the Ronald McDonald House.

I had a yard sale to help with funding this trip and did really well with it. But boy, it was a job! Also, the people at Howling Wolf, have been putting money into Tyler’s account, so we will be okay. I thank them so much; they have really showed how much they care about not only Tyler, but about the whole family. There just aren’t enough words to say how much we appreciate what they have done.

Jessica, thank you for all the updating you do on Tyler’s page. You have been just wonderful, also donating when you could. Thank you so much. Thanks to everyone that has helped. There are just too many to send emails to every single one, so we will say thank you here. You all know who you are. I will try to make daily updates while Tyler is in intensive care.

Hi everyone.

Well, times getting closer for Tyler’s surgery…two and a half weeks away. Everything is arranged. We have our flight set up. I’m worried about Tyler going through this surgery again, but I will have to put it in God’s hands, and keep my faith, please pray that Tyler will be okay. Tyler is a strong little boy.

He told me he’s a little scared this time. He’s never told me that before. He wants to have the surgery because he’s hurting. I know that with Dr. Rodriguez, he’s in the best care he can get. This doctor is amazing and I truly love and trust him. They did email me and set surgery on Tuesday March 29th instead of the 28th…something about not being able to get the operating room on the 28th…but that’s okay. It will give Ashley and me a little time to be settled.

Tyler is a trooper. He has had a long battle, and it’s not over. We still have a long journey. Tyler will win this battle, because we won’t give up. Tyler is in remission, but the cancer has done so much damage to his little body. Cancer sucks. It’s so hard on these kids. Please pray for all the cancer kids! Tyler will need leg surgery as soon as the jaw replacement is over.

Tyler still loves the snail mail the cards make him smile,

Tyler Tucker c/o Darlene Cox
PO BOX 14386
Greenville, SC 29610

Anyone wanting to help Tyler with donations can donate here at Tucker.com using the donation button or can go to any South Carolina sun trust bank and give the name Darlene Cox for Tyler Tucker. You can deposit to his account, or send by mail
Tyler Tucker c/o Darlene Cox
PO BOX 14386
Greenville, SC 29610
or pay pal at

Your prayers and donations has been what have kelp Tyler here, so thank you from the bottom of my heart. Know that the most important thing is prayers God will hear your prayers.

Someone asked what Tyler could use. He could use some button up pj’s for the hospital. He wears a boys 12 to 14. He’s really tall…and so, so skinny.

Pray, pray, pray for my Tyler!


FROGgin’ (F.R.O.G. – Fully Rely On God)
for

Tyler


Tyler Tucker c/o Darlene Cox
PO BOX 14386
Greenville, SC 29610

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