Archive for 2012

Please, anyone who doesn’t want updates on Tyler, let me know in a nice way. I will take you off our mailing list. I got a really smart email from Lisa (I won’t give a last name). She said she was tired of hearing about Tyler and not to ever email her again. This is a child that may not live a long life, and I know that he’s been fighting for years. I am only trying to save my grandchild, and she had to have emailed me, or I wouldn’t have had her email. We are suffering already. We don’t need more.

First, I want to start by thanking God, the Flights of Hope and their crew for the wonderful flight to Maryland. Thank you all for loving and supporting Tyler and our family. Also, thank the Greenville County Cancer Society for the $75 to eat while we were in Maryland, and for helping with Tyler’s family’s light bill. And thanks to the Marty Lyon’s Foundation for making Tyler’s wish come true. He will go to Give Kids the World at Disney on January 8. You are all angels sent from heaven and we love you so much.

We have some bad news… so sad. Tyler will have to have another jaw replacement surgery. Dr. Rodriguez said that he was getting a jaw built just for Tyler. He said that if we don’t do this, Tyler will not be able to eat before long, and that he will be in awful pain. Tyler still hasn’t got that darn virus he needs to do the transplant from his father. Dr. Rodriguez also said that we will have to keep Tyler on the Loratab until he can get the jaw made, and that we need to get prepared. He wants Tyler to take the Disney trip before the surgery, just in case he has to stay in hospital in Maryland a long time. He said our stay would be three to four weeks if everything goes all right.

Please, please pray for Tyler and our family. He’s been through so much. Dr. Rodriguez said that he would contact us soon as the jaw is ready for Tyler’s surgery. This will be number 56 for Tyler. I hate what cancer has done to my boy, and every other child. Unless you have a child like Tyler, you don’t know the hardship and the stress it puts on your family. Tyler has to go so far for treatment. It is worse for our family, traveling 600 miles each way. Thank all Tyler’s angels, no matter what you do to help. We are so grateful.

Tyler’s dad is still having bad pain from falling and breaking his back, but he was able to watch the boys while we took Tyler to Maryland. Poor mom has three teeth hurting her that she have her crying every day. We’re trying to figure out how to get the money to get them pulled for her. She’s an awesome mom and would give her life for her boys. I want you all to know that I have my faith and that I will never give up on Tyler. I know that without God, Tyler wouldn’t be here.

I am so grateful that Tyler has so many angels out there that love him. Thank God the house is paid off.

Please keep praying for Tyler and our family. If you can donate, please do. Your donations have helped Tyler with the medical treatments he so desperately needs. God bless, we love you all!

 

FROGgin’    (F.R.O.G. – Fully Rely On God)

for Tyler

http://www.caringbridge.org/visit/tylertucker
or
tylertucker.com

DONATIONS
you can donate to help Tyler at
pay-pal  ">

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Tyler Tucker c/o Darlene Cox
PO BOX 14386
Greenville, SC 29610

Please take a minute and  say a prayer for Tyler. He’s going to Maryland today to see what’s coming next. His jaw is hurting and pulling sideways.

Oh how I hate what cancer has done to him and so many more kids!

FROGgin’    (F.R.O.G. – Fully Rely On God)

Tyler
http://www.caringbridge.org/visit/tylertucker
or
tylertucker.com

DONATIONS
you can donate to help Tyler at
pay-pal  ">

">
Tyler Tucker c/o Darlene Cox
PO BOX 14386
Greenville, SC 29610

Hello everyone,

I took Tyler, Jayden and Ethan trick or treating last night. Tyler’s dad is still hurting with his back and their mom has a tooth hurting. We were not going to take them at first, but Jayden cried all the way home from school saying he wanted to go trick or treating. So about 6:30, Papa George and I dressed the boys and went out. We didn’t get to stay long because Tyler started hurting and had to get back for his pain medication.

Tyler will be going to Maryland to see Dr. Rodriguez on Thursday next week. They will be planning Tyler’s next surgery. He’s really getting in bad shape. Please say a prayer for Tyler and me. Tyler has to go to his leg doctor in Greenville next week. He’s getting to where it hurts him to walk.

It takes a lot of gas and food money for all these trips. When you have to spend the day at doctors, you have to feed the kids, it gets rough sometimes. If you haven’t already, would you please put Tyler tucker on your church’s prayer list?

Tyler only weighs about 63 pounds. He should be over 120 at twelve years old. They had mentioned a feeding tube. Oh, how I wish Dr. Rodriguez was here in Greenville. It would make things so much better. 600 miles is a long way from home.

Thanks to all Tyler’s angels, we have been able to take him to Maryland. But without your donations, we could not have done it. I just hope we can keep taking him. You all have saved Tyler’s life so far, but he has a long way to go. I don’t think I would be able to stand it if God decided that it was TyTy’s time, even going through all he has. He’s a happy child. He wraps those long arms around me and says, “Nanny, I love you.” In addition, that make everything I do for him and his brothers all worthwhile. I will fight for Tyler till the end.

I don’t understand why Tyler has to go through all this and I find myself asking God “why?” one day I will know. Pray, pray, pray for my boys. As usual, we need your donations… or even a subway or McDonald’s food card to use while at the University of Maryland Hospital would be great. I know there are so many out there that need help and it’s hard for people now. Just know that Tyler and I are grateful and love you all so much. I hope God blesses you today and every day.

Tyler’s says he’s blowing you all a kiss. Please remember all the people who have lost their homes and so much more because of Sandy. They also need a lot of prayers. Please tell your kids you love them each day, even if they are grown. You never know what may happen.

One more prayer request… my daughter Gail who is 43 has been in and out of the hospital for the last three months. She’s home, but not doing well at all. She says she doesn’t want to live. Please say a prayer for Gail.
FROGgin’ (F.R.O.G. – Fully Rely On God)

Tyler
http://www.caringbridge.org/visit/tylertucker
or
tylertucker.com

DONATIONS
You can donate to help Tyler at
PayPal: " target="_blank">
" target="_blank">
Tyler Tucker c/o Darlene Cox
PO BOX 14386
Greenville, SC 29610

Hello everyone,

Tyler is OK for now the pain medicine is keeping him comfortable. He has taken 120 pain pills in three weeks. I wish so much he didn’t have to take them, but his legs and jaw hurt really bad when we try to stop the pain meds.

All he can do is sit around, play his games and watch TV a lot. There isn’t much more he feels like doing. I am going to try to take him, Jayden and Ethan to church carnival.

I thank God every day that he has placed you all in Tyler’s life. Thank you from the bottom of my heart. I know I have asked for donations a lot, but without them, Tyler cannot get to Maryland, and he wouldn’t be here at all if he could not get the medical needs taken care of.

I wish I didn’t have to ask, but there’s no way I can get Tyler to Maryland without your help, so thank you! There just aren’t enough words to say how grateful I am.

I want to thank all Tyler’s angels for making his birthday wonderful. I also thank God that the Marty Lyons came through, and Tyler and our family gets to go to Give Kids the World at Disney. T was going to be in a few weeks, but Tyler isn’t able right now. So, it will be in January. Please pray he will be able to go. He really needs this, and so does the rest of the family.

We make another trip to Maryland on November 8 to see Dr. Rodriguez. I know more surgery is coming up. Something is going to have to be done about his jaw. I just hope it can wait until after the trip to Disney. Christmas is now getting closer and Thanksgiving too. I have so much to be thankful for!

As always, if you can or want to help, you can use PayPal: or use snail mail:
Tyler Tucker c/o Darlene Cox
PO BOX 14386
Greenville, SC 29610

We love you all so much. Please keep praying. Thank you all for all the years you have stuck by Tyler, praying, loving and supporting him.

One more thing… he has asked that we stop taking pictures because he said he cannot smile. I hope he will change his mind about this…

Hello Tyler’s angels, good news first the Marty Lyons foundation has approved Tyler’s wish for Disney, has also approved for Nanny and Papa and Nathan to go along with Tyler and his family! Tyler was so happy when I told him. Unfortunately, we can’t take him there right now. We will have to put it off until we see Dr. Rodriguez on November 8 and find out more about Tyler’s new problems with the jaw.

We asked if we could wait and try to go in January. This is a fantasy vacation that Tyler will never forget. I pray he will be able to go in January. His leg is hurting and he has been put on amitriptyline 100mg tablets for depression and muscle pain. Dr. Becklish said that the muscles in Tyler’s leg are damaged from the surgeries and that he will hurt the rest of his life from it.

Also, his jaw is hurting because it’s going sideways and pulling on the other side, causing both sides to hurt. Tyler has no jaw joint on one side of his face. Just skin covering his jaw. He’s on different strong pain medications for the jaw pain. Please keep praying for Tyler.

Cancer and the surgeries have destroyed his little body. He’s had 54 surgeries now and is facing more…all 600 miles from home. Thank God for Dr. Rodriguez and his team and all Tyler’s angels out there. No matter how you have helped, we are so grateful. Tyler loves all the cards and thanks for all the gifts and cards sent for his birthday. He said Nanny, “There are lots of people out there that care about me.”

The Greenville County Cancer Society is doing a story on Tyler. It will be on their site and published in their magazine. They called and said that Tyler had stolen the hearts of many, many people and that they love him. Tyler is a trooper.

I also want to tell you that the homebound finally got started and Tyler got his teacher Mrs. Bright back. He loves this teacher so much, and she is so good with him. Thank you Mrs. Bright!

Thank you to all who have donated to Tyler and our family. Without the donations Tyler cannot go to Maryland. Without going to Maryland for his medical needs, I just don’t know what might happen. I hate to even think of it. So please, from the bottom of my heart, I thank you and promise you every donation is spent on Tyler’s medical expenses and traveling to doctors. God bless.

Please keep praying for Tyler and our family. Tyler has been fighting for 10 years now and you can tell. He’s tired and weak, but he will never give up. And I will never give up on my boy. I just wish I could fix it, to make all the surgeries needles, pain and long trips, all go away. I can’t, but I can always be there for Tyler and his mom. We love you all. I am asking you to please stay with us as Tyler tries to win this battle. We love you all so much.

I pray that you don’t have a cancer child and that you never get one. It’s not over even if the cancer does go in remission. It’s still a long hard journey. You sit and pray every surgery that he’s going to make it through. And then you sit and watch all the tubes, all the suffering, and wonder if your baby will get through another one. So far, Tyler has been strong, and we have kept our faith. God bless, we love you all.

Anyone that wants to donate to this dear sweet child can do so in one of the following ways:

 

PayPal: 

Snail mail:
Tyler tucker c/o Darlene Cox
PO box 14386

Greenville SC 29610

Tyler’s sites:

www.tylertucker.com

www.caringbridge.org/visit/tylertucker

www.myspace.com/tylertucker101

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