Archive for March, 2012

 

Hi, all Tyler’s angels out there.

Tyler is doing better with each passing day. He’s such a strong little boy. His jaw is a bit swollen this morning, but that was expected.

We are at the Ronald McDonald House, Baltimore Maryland. Tyler will see the doctor again today. Things look good. Shame it is just temporary. I pray that the next surgery in June or July will work. He needs a few years break.

Tyler won’t be able to go to Carol Winds with Courageous Kids. Can’t take the chance of him getting bumped or falling. He was really hoping to go this year.

I know you all love Tyler and are his angels. just know that God placed you in Tyler’s life, and we thank Him for each one of you. If you have time, drop Tyler a card at his post office box:

Tyler Tucker

PO Box 14386

Greenville SC 29611

He would really enjoy getting some cards. We have to be back in Maryland April 19.

Steven, thank you for getting the movies for the iPad.  Tyler is really enjoying them because he can’t do much right now. Mr. Banks, thank you so much for all the help with our trip

Thanks to everyone that has helped us, you know who you are. we are so grateful, there just aren’t enough words to say how grateful we are. I am saying thank you here to everyone. May God send you many blessings. There are so many that help. Like Jessica that keeps up with TylerTucker.com. She’s been such a blessing.

 I also wanted to say that we have already made five trips to Maryland this year. Gees, I know God is using Tyler, so that other kids can be helped and the doctors can save other children by just what they have learned helping Tyler.

The doctors in Charleston tried to get us to give up on Tyler. But by now, you all know that that will never happen as long as I am alive. Dr. Rodrigues said that he would never give up on Tyler the way SC did. He said that he would keep doing temporary jaws until he finds one that will grow in Tyler’s jaw.

He also hugged me and said that he was so proud of me for losing the hundred pounds. I did this not just for me and health reasons, but so I will be around to finish Tyler’s journey with him.

The main thing in my life is my faith. I know God is holding my hand all the way. We have been on this journey almost ten years. We have been through some horrible things. I pray that none of you have to ever have a child go through what Tyler has…or his family.

Ashley cries each surgery, but knows we have to let Tyler have the surgery. Please tell your kids you love them each day, you don’t know what tomorrow will bring.

Thanks to all of Tyler’s angel out there. we love you all and thank the lord you all love Tyler. I know god has sent you all to Tyler and our family!

We are still at the hospital and will most likely leave here in a day or so, but will have to stay in Maryland at the RMD House with Tyler. We still could use donations to help Tyler and our family.

And we have lots of trips once we get home. We’ll have to go to the doctors, thirty miles each trip… and then there are the other kids who have to go along. They get hungry before they get back home. Some of Tyler’s medications will have to be paid for while we are here in Maryland. His Medicaid won’t pay for it while in Maryland unless he’s in the hospital

Just letting you all know that all donations are used for Tyler’s medical needs. If you know some that will have a benefit for Tyler that would be great (maybe your church?).

Please sign Tyler’s guest book and let us know you are here praying for Tyler!

Also, Tyler’s isn’t alone. He has a friend, 16 year-old Dylan is having jaw surgery on the 4th in Charleston at MUSC. Say a prayer for Dylan.

Tyler will be having more surgery here in Maryland in a few more months, so keep him in your prayers. Dr. Rodriguez said that one day he will find a bone that will grow in Tyler’s jaw. He said, “I will never give up till Tyler is completely healed and well.

Tyler is doing really well, and they are keeping him out of pain. Please, in your prayers, pray for Tyler’s wonderfully doctors and his team. Thank god for sending these wonderful doctors to us. We truly love you all!

Hey, it’s Tuesday March 27th .Tyler is in intensive care with a breathing tube. He’s doing well, and the tube will come out today, we hope.

We need your prayers and are so grateful to all of Tyler’s angels

He had a temporary jaw put in, and they had cut a vein in last surgery and had to cut his leg again to get replacement vein for the jaw. His temporary jaw looks good, but he is facing more surgery in June or July.

Please say a prayer for Tyler. If you can help with donation, please take the time to do it. You can donate here at tylertucker.com with the donation button. Even a dollar will help. Tyler does not get the donations made CaringBridge because it goes to keep the site pages running .Tyler loves cards, and would love to hear from you. Tyler wants an iTunes card, but we have no way to go get one, so if any one wants to send this to him, you can send to the Baltimore Ronald House, Tyler Tucker, Room 314.

We will be at the RMD House when we leave the hospital (not sure just yet when that will be). Dr. Rodrigues and his team are wonderful, and show their love for me and Tyler every time we see them. Tyler is a trooper, and I am so proud of him.

I also wanted you all to know I lost one hundred pounds. Now I can travel with my TyTy. Gosh, I love him so much, he’s my hero! And I will never give up on Tyler. Never will I let the devil win this battle. Tyler WILL beat this.

Once again, thank you to all Tyler’s angels out there!

Tyler’s jaw replacement surgery is this morning (6 am). Please say a prayer for him. They are also trying to fix a vein that has problems because of the November surgery. Dr. Rodruguez said he doesn’t know if that can be fixed.

This will be a long surgery, more than eight hours. Please pray for us. I know God will hear your prayers. It also helps a lot if you post your prayers on Facebook for us. Please pass this to all the people you know and ask them to Pray for TyTy and our family.

We thank everyone that has helped us with the trip. There just aren’t enough words to say how grateful we are. You all have been wonderful. We love you all!

All donations are spent on trips and travel and medication that Medicaid won’t pay for. We will miss the little ones left at home, but they will be better off at home with Daddy. I hope we won’t have to stay too long, but it depends on how our TyTy does. This is a major surgery.

 

Hello.

Well it’s only a week next Monday that Tyler will be having his jaw replaced again. In all this will be 49 surgeries for Tyler. He doesn’t seem to worry about the surgery he said, “Don’t worry nanny. I am use to it.”

Tyler is so grateful for everything that has been donated to him. It has helped him cope with everything. Thank you to all Tyler’s angels, you know who you are. You have surely helped to keep Tyler here on earth with us. I know that without all the love and support you all have showed, Tyler would not be here, because there’s no way we could have gotten him to Maryland for all the surgeries and medical attention he needs. There’s a lot that his Medicaid just won’t pay for. And that’s a shame.

We will be leaving for Baltimore, Maryland on the 25th. Please pray he will be okay and not suffer too much. Gosh, I wish they could get his blood to get the virus he needs so he can get the bone transplant from his dad. He was tested here, but no such luck. So now, he will have to get the new jaw that was made and donated.

We will have to still wait on the bone transplant. I don’t know what the plans are, but Dr. Rodrigues Is planning something else to help Tyler in June or July. Please pray they will find a cure for Tyler’s jaw and leg. I love him so much. I wish I Could take all the pain away.

Tyler is still hurting in both his jaw and both legs. He has had to go to ER twice in two weeks. All they can do is call Dr. Rodrigues and give him pain medication. He’s the best kid you ever saw, and always wants something for his brothers if he gets something. I got him a flash light and he asked that I get one for his brothers and Nathan.

He’s eating a few different things His mom got him to eat sweet corn bread and still loves the chicken wings. Has to be watched because he chokes on them.

If anyone wants to Help Tyler and his family, you can donate at tylertucker.Com. Or mail a check or just send Tyler a card. He loves the cards, and it makes him know how much he’s loved. You can also use the donation button or my pay pal account at , or mail to us. If your church or anyone would want to do a benefit for Tyler, that would be wonderful. Gift cards are also welcome.

Tyler will be having surgeries the rest of his life, but we will get a break if he ever gets the virus and it works. Dr. Rodrigues is hoping that he will have at least a year or two break from all this.

Also, I won’t go into details, but I am fine. Feeling good and have lost 100 pounds. Nathan’s birthday was a great success, thanks to his daddy David for stepping in and helping pay for it. Please please pray for our family. This is so stressful both mentally and financially.

Kiss your kids and let them know you love them. What if this was your family? You sure don’t know what tomorrow will bring. We love you all.

— Froggin’    (F.R.O.G. – fully rely on god)

for

Tyler

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Tyler tucker c/o Darlene Cox

PO Box 14386

Greenville, SC 29610

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