Archive for July, 2013

Hello everyone, I have a new update on Tyler.

There’s some good news and bad news. First let me say that we are so grateful to everyone that loves Tyler and cares what happens in his life. He’s one strong little boy.

Tyler saw Dr. Rodriguez and he says Tyler’s jaw looks good. Even a muscle in his face has started giving a little movement. His face is still lined up and he is still able to eat. He is having some pain because of the hospital cement, pulling the other side of his face and making it hurt. And this rain is not helping. His medication is helping with the pain.

Ashley told Dr. Rodriguez that she doesn’t want Tyler to have the jaw replacement as long as he’s doing okay; that Tyler and his family need a break. Dr. Rodriguez said that we will try to wait. He said to bring Tyler on November 7th and he will try to wait until January 1st to do the surgery. He said that if the hospital cement starts to deteriorate, we will have to bring him sooner. Otherwise it will hurt and his face will go back to the way it was. He may need the surgery sooner. Tyler will see a doctor here just to check on Tyler and make sure he’s okay. This doctor will keep in touch with Dr. Rodriguez.

Please keep Tyler in your prayers. He’s still got a long way to go. His legs are hurting and beginning to slip off the big bone again. Tyler will have to go see Dr. Beckish here in Greenville about his legs. He will have to put new screws in.

The flight home was much better than the one to Maryland. The beeper only went off on Tyler because of the metal in his body.

My eye surgery is on August 5th. Say a little prayer for me. The doctor said that I am having a cornea transplant and that I will be just fine in a few days.

Everyone else is doing fine and we thank god for that. Also thank god for placing each of you in our lives. Without you, there’s no Tyler. God is hearing your prayers. God bless each of you and please let your family no how much you love them.

Froggin’ (F.R.O.G. – Fully Rely On God)

Tylertucker.com

Http://www.caringbridge.org/visit/tylertucker

DONATIONS

You can donate to help Tyler at:

PayPal:

Or Mail

Tyler Tucker c/o Darlene Cox

PO Box 14386

Greenville, SC 29610

Just letting everyone know that Ashley, Tyler and Papa George made it to Maryland safe and sound at the Ronald mc Donald House. Well, things didn’t go so well getting on the flight, but they are in Maryland and at the Ronald McDonald House with people that love and care so much.

They had a hard time with the commercial flight. First, the alarm went off on Tyler with all his hardware in his little body, even though Children’s Flights of Hope had already advised them of Tyler’s condition. They still made us take his shoes off and be searched. They made him stand up from his wheelchair the second time and do a pat down on the little boy.

Finally, they let him through, and then it was Ashley’s time. She said that the alarm went off again, and they asked her if she wanted a private room to be searched. She said no, so a really heavyset lady led her behind a glass door and made her stand with her legs apart and patted her down.

She asked why this was being done and they told her it was random. She had never been on a commercial flight before. Still, this was humiliating and embarrassing for Ashley. I wanted to cry for her. This was United Airlines.

Please say a prayer for our family. We already are going through so much in Tyler’s journey and things like this make it even worse.

God bless. We love you all. I also want to thank the Cancer Society of Greenville and Steven for their help with this trip.

froggin’ (F.R.O.G. – Fully Rely on God)

tylertucker.com

http://www.caringbridge.org/visit/tylertucker

Tyler Tucker c/o Darlene Cox

PO BOX 14386

Greenville, SC 29610

 

DONATIONS

You can donate to help Tyler at PayPal: ">

Hi everyone,

Tyler, his mom Ashley and papa George leave Wednesday for Maryland to see Dr. Rodriguez. He will just be going for a checkup and to see what the doctor says about his next surgery. Tyler still seems to be doing okay. He has had some pain, I think because of all the rain. Tyler says to say thank you to all that love him. He loves you all. He still looks good and is still able to eat. I don’t know how long before the hospital cement will start dissolving, though. Then everything will go back as it was.

God hears your prayers, thanks to everyone that has help with the trip and food for the trip. Thanks to Children’s Flights of Hope for paying $1,300 on the commercial plane tickets. We will have to get gas to Ashville and back. The food is taken care of, so they are all ready for the trip. They will stay at the Ronald McDonald House.

Please keep praying. Tyler is a long way from being well. I will have the surgery on my eyes on August 5. I hope I will be able to see after the surgery. It shouldn’t be bad at all… a few days and I’ll be just fine. Please keep us all in your prayers.

We need donations help Tyler with his medical and travel expenses. If you want to help Tyler, please donate through

PayPal: ">

Or send by mail to

Tyler Tucker c/o Darlene Cox
Po Box 14386
Greenville, SC 29610

Donations keep Tyler going to Maryland for the help he so desperately needs. So, if you can help please do. You all are Tyler’s angels and we love you!

Tyler only has 10 more days till he flies off to Maryland to see Dr. Rodriguez for a check on his jaw and to see when the next jaw replacement is planned. I won’t be able to go this time, so his pap George is going with him and his mom. It’s not safe for Tyler and his mom to be walking from Ronald McDonald House to the University of Maryland Hospital by themselves. Last time, there was a drive by shooting in front of the hospital. We saw a man beating a woman on the sidewalk as we walked into the hospital. The police were pulling up.

I really hate not going with TyTy, but this is just a checkup that has to be done in Maryland. I will be seeing the doctor here to find out when they will take the cataracts off both my eyes. I can barely see.

I also wanted to let you all know that all donations from Caring Bridge go to the website to keep it running. They don’t go to Tyler or help him with his medical and travel expenses. If you want to help Tyler, please donate through PayPal:

or send by mail to

Tyler Tucker c/o Darlene Cox

Po Box 14386

Greenville, SC 29610

Tyler and his family need your prayers and donations. If you have it in your heart to help this child and his family, I know god will bless you. I promise that all the money is used for Tyler’s care. It costs a lot to get Tyler to Maryland as I said in last post. Flights of Hope paid $1,300 on the flight and I had to pay $640. If anyone needs a flight for a sick child, the Flights of Hope number is 919-460-4334. This is a wonderful organization. Thank you all so much at Flights of Hope and Debby “Flash” Stephenson at

Courageous Kidz

230 Old Dominion Dr.

Charleston SC 29418

843-767-2129

Tyler loves the cookies you send him. He soaks them in milk. Courageous Kidz helps families in need when a child is battling cancer. Thank you for all the years and love and support that you have stuck by us. even in the beginning when we didn’t have anyone else. I am so proud to be in the Courageous Kidz family. I love each and every one of you. No matter what you have done. We are grateful.

 

This has been a long journey and it’s is far from being over. God has blessed us by letting TyTy stay with us, and without your prayers and donations, we couldn’t get him the medical care he needs. Tyler loves all the cards he was receiving, but he hasn’t been getting many lately. If you have one you could send to him, he would love hearing from you, knowing that you love and support him. I am asking that you all please don’t give up on Tyler. We love you all and know that his angels are what keep him here with us. If you could ask for prayer on your page, it would be wonderful. Prayer helps so much.

It has been raining for a long time here in Travelers Rest and it’s supposed to rain all next week. This makes Tyler hurt in both his legs and face. He hasn’t been outside in the last four days. Tyler loves all the cards and thanks you all for sending them to him. God is in control of Tyler and his family’s life. With God, all things are possible. I truly believe that God has Tyler here for a reason; I also know God hears your prayers. I don’t understand why Tyler has to go through all he does, all the suffering and pain, all the needles, IVs and tubes, not knowing if he’s going to pull through. Then the surgery failed. Dr. Rodriguez says that if we don’t keep trying, Tyler will never have any kind of life. He intends to fix Tyler’s jaw one day and find a cure for Tyler. Oh how I love this doctor. If you don’t have a cancer child, you just can’t know what this is like.

The failed surgery was May 31, surgery number 58. Now he has to have yet another jaw replacement in a few short months… Number 59 coming soon.

FROGgin’ (F.R.O.G. – Fully Rely On God)

tylertucker.com

http://www.caringbridge.org/visit/tylertucker

Tyler seems to be doing ok. He’s not in a lot of pain. He seems to be eating a little better. Shame his temporary jaw won’t last long. He has to have another jaw soon.

Tyler has to go to Maryland on the 18th so Dr. Rodriguez can check his jaw to make sure he’s ok. They are talking about using the jaw that was made and they couldn’t put in because the skin was so thin and busted open, causing them to cut through his ear canal. They might also use hipbone. Please pray for Tyler. I got a call from Flights of Hope and they said it costs too much to fly privately, so Tyler has to fly commercial.

They paid $1,300 on a flight and I had to pay $640 from Tyler’s fund. Now Tyler’s account is empty. IF you can donate to help Tyler, please do. This will be surgery number 59 coming up. There seems to be no end. I don’t know what we will do, because we cannot afford this every month. Please pray for Tyler and our financial needs. This is rough. God has always provided a way.

Prayer is most important. And I know without Tyler’s angels, he wouldn’t be here today. So thank each of you from the bottom of my heart!

 

Froggin’ (f.r.o.g. – fully rely on god)

 

tylertucker.com

Http://www.caringbridge.org/visit/tylertucker

 

Donations

You can donate to help Tyler at

PayPal:

 

Tyler tucker c/o Darlene Cox

PO Box 14386

Greenville, SC 29610

Froggin’ (f.r.o.g. – fully rely on god)

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