I just received a distraught email from Darlene. Tyler is in Maryland now. He flew there this morning with his mom and papa on the Flights of Hope. After he sees the doctor, they are flying him home again. Darlene couldn’t go because Ashley could only bring one person and needed her husband so that he could help get Tyler on the plane (which Darlene cannot do). She understands that it’s just cheaper and easier on everyone for her to stay home, but it’s very hard for her to be away from Tyler, especially getting some bad news about his jaw.

They did x-rays and said that the surgery on Tyler’s jaw didn’t work. They are now seeing it as a temporary fix. Tyler’s journey remains long, with no break in sight. Dr. Rodriguez said that Tyler will have to go back to Maryland August, 11th unless he has more trouble with his jaw before then. The jaw is infected as well.

They discussed possibly taking bone from Ashley’s fibula, but because Tyler has had so many failed surgeries, Dr. Rodriguez doesn’t want to chance having both Tyler and Ashly laid up in the hospital. She has other young ones to think about as well. Although Darlene was willing and able to donate bone, it must be from the mother since she is a closer genetic match. [Darlene clarified for me that Dr. Rodriguez does want to look at trying a donation from Ashley in 8 or 9 months. Ashley is more than willing to donate bone for Tyler.]

Darlene is very upset, since the jaw surgery was one of their last chances to keep Tyler off a feeding tube. He’s so thin already. When the titanium jaw was working, he was eating again and putting on weight, but that was short lived because of other cancer complications.

Dr. Rodriguez wants to give Tyler  time to heal before the next surgery. He’s already had 45 procedures and now he’s had his leg painfully broken for nothing. He’ll have to have yet another surgery to get the rods out from that. Tyler will have physical therapy three times a week, and the place is 23 miles away in Greenville, 46 miles round trip three times a week. Then he’ll see the Greenville doctor that treats his jaw.

She writes, “Please, please pray for Tyler. He needs those prayers. This is so stressful, emotionally and financially. Thank God for all the people that care about Tyler and try to help our family. Pray for the Cruise-In, that it turns out good and that we make some money for Tyler’s account. Pray for Ashley, Richie and me that we will make the right decisions for Tyler. Like my friend Flash always tells me; its in God’s hands. IF YOU HAVE KIDS, KISS THEM. LET THEM KNOW YOU LOVE THEM EVERYDAY. No one knows what tomorrow will bring. Thank God for each healthy child!”

FROGgin’    (F.R.O.G. – Fully Rely On God)

for

Tyler


Tyler Tucker c/o Darlene Cox
PO BOX 14386
Greenville, SC 29610

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