I’m going to try explaining what’s going on with Tyler and our family.  Papa George had to drive them because Ashley and Richie have no car. So Papa went and stayed RMD House with Ethan and Jayden. Papa George loves these boys so much. Tyler and the family drove all the way from Greenville to Baltimore Maryland.

It took four really tough days. Ashley’s bone from her leg was not a match, so dad Ritchie was in line next. They tested Richie, took scans, drew 22 vials of blood, and did a physical. Dad is a match, so this was great news. Then there were meetings long meetings with doctors and more doctors. Dr. Rodriguez has to have many teams for this surgery; transplant teams, all kinds of teams, so there were meetings with each team. Dr. Rodriguez explained how much Tyler needs this surgery. Without it, things don’t look good for Tyler.

Tyler is in constant pain from his jaw and stays on prescription mediation. He can hardly eat and it’s getting worse. He also has leg pain and cries when the weather is bad or raining, or if he tries to walk any distance at all.

All the doctors agreed that this has to be done except for the head of the Oncology Department. If one doctor disagrees then they cannot do the surgery. The oncology doctor said to Ashley that this surgery has only been done one time, seven years ago, and that was not on a jaw; since then, only to monkeys experimentally. The medication Tyler would be put on could cause a secondary cancer. Tyler could die in the surgery. She thinks there’s too much risk. I wonder if she would say the same if this were her child. What kind of life will Tyler have? This is so sad. We need your prayers.

Dr. Rodriquez said that Tyler doesn’t have many options. The oncology doctor said to take muscle from Tyler and try that. I talked to Dr. Rodriguez he told me that taking the muscle from Tyler’s leg could cripple him for life. I told him no. We weren’t going to do that. Tyler already has his legs messed up from taking his fibula from both legs and from his leg being broken from the surgery in April this year. He still has metal rods in his leg and screws to hold his ankle on to the large leg bone.

He told me to give him a week or so and that he was going to try convince this doctor that Tyler must have this surgery. His future depends on it. He also said that he would get the surgery done if he has to come to Charleston to do it. Dr. Rodriguez said that he would never give up on Tyler. Thank god for this doctor. We know that he will do what he thinks is best for Tyler. He also said that he has to take the metal plate out of Tyler’s jaw, so his jaw is going to turn his face sideways and flat on one side. But it has to come out before infection starts. He told me not to cancel anything; that he was hoping that Tyler could still have the surgery on November 28th.

So we are just praying that God’s will be done. Dr. Rodriguez also called Dr. Kaveka in Charleston and told her what the oncologist had said and she wouldn’t agree. He’s hoping she can change the oncology doctor’s mind in Maryland.

This is so hard on our family. We believe that Tyler should have this surgery. It’s about all the hope that’s left until he’s grown. What’s he to do…lie in pain and take drugs? What kind of life will this be for TyTy?

Please pray for us and help us make the right decision. We also want to thank everyone who has donated to Tyler. Without help, we cannot get Tyler the medical attention he needs, or to Maryland to see Dr. Rodriguez. God bless you all and thank you all so much for helping save Tyler. If you can donate, please go to Sun Trust Bank; give my name and Tyler’s. Or mail

Tyler Tucker c/o Darlene Cox
PO BOX 14386
Greenville, SC 29610

Or right here on tylertucker.com. We will be taking Tyler to doctors for the rest of his life. Please keep praying for TyTy.

FROGgin’    (F.R.O.G. – Fully Rely on God)
for
Tyler

Tyler Tucker c/o Darlene Cox
PO BOX 14386
Greenville, SC 29610

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