Hi everyone,

Well things here have been rough. Not with Tyler, just other things happening. My best friend for 34 years is in the hospital and the doctors say she won’t be coming home. She’s on life support and needs a miracle. I am really hurting. I know she will be in a better place. She just turned 60. Please say a prayer for her. Her name is Martha.

Tyler wanted to know why they have taken his granny Martha and why they were putting a tube in her mouth. We told him she couldn’t breath well and that was why they were putting a tube in her. He looked at me and said, “Nanny, if she goes to heaven, you know she will have wings, don’t you? Don’t worry.” Then he thought a minute and said, “Nanny, just go bring her home. I had a tube and you brought me home.” He thinks she has a tracheotomy like he had.

As far as the rest of us, we’re okay. Tyler’s bone in his jaw is dying fast. The side of his face looks like it shrunk back to the size of a two-year-old again. Tyler’s jaw has been hurting. They say there’s nothing left; that they don’t know how to fix it . Yes we have asked about plastic or some thing that would work other than his body parts. I even wanted to give him parts from me. They say it will not work.

Tyler’s face is starting to look bad again on that side, and it hurts. The last two surgeries have failed. I have tried to contact the doctors in Florida, but haven’t heard back from them yet. Also Tyler’s little mouth hurts when he tries to eat.

We have gotten him to start eating a few more things. He decided that he likes spaghetti. He also tried corn, but he only will eat it on the cob. With only about five or six teeth, that’s hard for him to do. But he tries. Then he cries because his mouth hurts. Tyler still cries with his legs hurting and even falls because they are weak. Please keep praying for Tyler and us.

I want to thank Steven for replacing Tyler’s X-box 360. He was lost with out that. Steven, Tyler loves you so much. Thanks to all of you. Please keep praying for TyTY and our family.

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